I’ve been able to loose a couple of the things weighing on my mind.
a couple of them
no longer on my mind…
* HER2 increase of 5.2
* Not enough money for September meds
* Burzynski $1,500 “Medication Management” fee
* Rejection by my PCP to handle Rx reorders
* Xeloda PAP Eligibility Denial
These are the things on my mind
No longer on my mind
Loosing my mind
Last night (Sunday) was my last dose of Sodium Phenylbutrate… my last 8 pills from my August supply. And my last dose of AmnioCare A10 (which appears to be a form of the Antineoplaston Therapy)… my last 2 pills from my August supply. The last of my supply…
I haven’t been able to pay for my September supply yet. I’m trying to get the money for September, but until I do, I’ll have to forego part of my treatment. That’s kinda scary, expecially since I just had bloodwork done and am waiting the results.
Especially scary cuz “It has been shown (Samid 1992) that Phenylbutyrate arrests tumor growth and induces differentiation of pre-malignant and malignant cells through this non-toxic mechanism.” and “Phenylbutyrate has been shown to be a non-toxic differentiation inducer, promoting maturation of various types of malignant cells. Maturation makes the cells less aggressive, causing them to cease dividing and eventually die.“
Let’s see that again… “makes the cells less aggressive, causing them to cease dividing and eventually die.“
Yes – DIE.
Scary cuz I will have to go without until I can pay for September’s supply.
And after September…
October…
November
December…
I’ve said it before…
CANCER SUCKS.
AND SO DOES THE COST OF TREATMENT.
Tags: Finances, Sodium Phenylbutrate
So, after reading through the blog of another patient of Burzynski Clinic, I see that she has had some good fundraiser activities.
My finances are starting to look bleak, since donations have really slowed down. I’m not meaning to complain, cuz I’m *V*E*R*Y* Grateful to those who have donated to my cause. But August depleted $6,490.00 from the fund ($4,620 for monthly meds, $1,200 for PET/CT scan, $360 for Bone Scan, $310 for Zometa infusion and monthly blood tests coming up at about $120), and that is just for one month. So… not much is left.
When I started this blog, I was hoping for $1 from 150,000 – 200,000 generous people to help me to cover my expenses (treatment, surgery, radiation and hopefully reconstruction). This is not money for a whim, to buy a fancy car or new home. No… this is money so that I can live.
I didn’t think that $1 was much to ask for. When I was more active on eBay, I used to always add a $1 donation to my payment, for whatever charity was being promoted. Afterall, it was only $1, and enough $1s add up. And each $1 I donated made me feel good – I was affecting a cause.
And that is what I thought about me… that the $1s would add up.
But my situation is just not reaching that far, or touching that many. And my $1s are just not adding up.
Yes, I too have had some Generous donations and I Do feel Very Blessed for them! But they are long gone… And its scary to think about discontinuing this treatment due to lack of finances.
I’m gonna really need to “step it up” to get some incoming generated.
I know I’ve mentioned this before, but when I get home after work, because of my condition and the medications, I’m so tired, I just crash. So I have neglected my fundraising duty.
Gonna have to not crash and suck it up and do some work.
Hi Ho Hi Ho…
Tags: Finances, Fundraising
