Tag: Dr Salloum

Tuesday, August 11th, 2009

Bone Scan #1 – Done

Did Bone Scan #1 today… not AS expensive as the Pet/CT #3, but still had to hit the fund… this time for $360.00.  Bone Scan was at Houston Medical Imaging and the first one I’ve done.  It’s necessary, cuz we need to see what is up with the suspected tumors on my spine.

To go back over my story…

From what I’ve been told, the cancer has metastised / spread to my bone, to the vertebra in my lower spine.  We’re not sure just how bad it is cuz I didn’t have a baseline scan done. A baseline would show where I WAS (back “then”), vs where I Am Now (whenever “now” is).

The radiologist’s report from my PET/CT scan #1 (March 10 2009) suggested several times due to “suspected metastisis”, to have a bone scan done, but this was never relayed to me.

PET/CT scan #2 (April 16 2009) showed more specific area of concern, but I had just received a shot of Neulasta (due to chemo), which causes the body’s bone marrow to “go into overdrive” to help recover from high-toxcity chemotherapy.  Such extra activity could be misinterpreted in a PET/CT, but could also, just as easily, be a true metastisis… These areas were identified as spinal tumors at Burzynski Clinic.

My 3rd opinion, from Dr. Emile Salloum (of Christus Spohn Cancer Center in Corpus Christi, Texas) was hopeful that these “suspect areas” were a false positive due to a combination of arthritis and Neulasta.  I’ve never been diagnosed with arthritis though it is very prevalent in my family.  A “false positive” would be the Most Preferred outcome – Of Course!  And I Am Hopeful!  However, I Also have to keep a touch of reality and remember that I was mistreated for 8 months, and that is a long time to be walking the wrong path…

Back to the Bone Scan…

Again, it was a good experience; again Zaki was the tech, and he did a good stick, Not as good as yesterday, which was relatively painful, this one did cause a small prick of discomfort… He gave the infusion… this time I had to wait TWO Hours before testing began!  Mom and I drove around, and found an Awesome Thai restaurant, had lunch, then went back to the Lab.  At about 12:30, the test commenced. That took another hour+.

Again, it was tiring…

Again, I’m hoping
praying
for some good results.
Again.

Mom took photos…
again

(Results HERE)

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Thursday, April 30th, 2009

Consultation – Dr Salloum

The consultation with Dr. Salloum was… interesting.
To Say The Least.

It has been brought to my attention that,
while the science of medicine
is an established science,
The practice of medicine
is an individual philosophy.

The Friday before the appointment, I sent Dr. Salloum a complete set of all my records – everything I had.  Including CD copies of the 2 PET/CT scans.  And brought copies of more info I acquired in the few days since I sent the original packet to him.

According to Dr Salloum, he…:

#1. …would have treated me for a staph infection no more than 2 weeks before he did more tests, biopsy, etc.  With my Family history, he would have much more proactive.
With my family history, I should have been more proactive, but I Trusted my Doctor to be knowledgeable and make appropriate suggestions / decisions regarding my treatment .  He said it was a staph infection – I Believed Him.

#2. …believes that I have Inflammatory Breast Cancer.  (reference Feb 25 2009 Breast Needle Core Biopsy Results which indicate “Infiltrating Ductal Carcinoma”, page 1, page 2, page 3, page 4, page 5)
This is stunning (like a gun) news to consider, but many of the common symptoms are certainly more closely related to what I experienced.  It just gets better and better…

#3. …is hopeful that the 4 vertebra tumors (supposedly indicated in PET/CT Scan #2) are a “false read” due to the large amount of Neulasta (the bone marrow stimulator) that is currently in my body. Dr. Salloum indicates that one Neulasta shot is good for up to 3 weeks (I had been told only 3 days); getting a shot every 2 weeks for 8 weeks would probably add up to a “large” amount.
While that would be a Great change of fortune and would certainly explain the increased back pain, I’m gonna stay realistic until I get test results that say otherwise.  Bottom line – I have Breast Cancer, That will not change.  However… one can certainly Hope for a better result for the metatastic bone cancer diagnosis!

#4. …strongly suggests that I continue to follow the traditional treatment / recovery of chemo – surgery – radiation; he recommends a smaller dose of chemo, administered every week for 12 weeks, vs a larger dose administered every other week for 8 weeks.
If I continue on the chemo path of treatment / recovery, this is definitely something I’d look into.

And That is the new information that I got to put into my pot and stir…  Here’s a copy of his “doodling notes”

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Monday, April 27th, 2009

More News – Dr. Salloum, Christus Spohn Cancer Center

I have an appointment with a Dr. in Corpus Christi (Texas). Dr. Emile Salloum, of Christus Spohn Cancer Center. Dr. Salloum is Medical Director, Christus Spohn Stem Cell Program. Stem Cell Program. Stem Cell… Chemo kills Stem Cells.

Dr. Salloum is also my Father’s oncologist, and he graciously agreed to look over my reports, to give me another opinion, a 3rd opinion.

I overnighted my complete records (to my Dad) last Thursday, my Dad delivered them to Dr. Salloum’s office on Friday, and Dr. Salloum called today (Monday), and wants to see me on Thursday (April 30). Mom and I will leave Houston early and return Thursday evening after the appointment.

We shall see what he reveals…

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