Tag: Bone Scan

Tuesday, August 25th, 2009

September Meds

Its time to get my September meds from Burzynski Clinic, and I’m afraid that I don’t have the finances to cover the monthly cost.

August was a big hit to my funds, took $6,490.00 to keep going… first the cost of my monthly meds ($4,620), the PET/CT scan ($1,200), the Bone Scan ($360), the Zometa infusion ($310) and the monthly blood tests coming up (about $120).

And my lack of fundraising has also stalled things.  It’s just so difficult to try and do it all, all alone, especially when the medications make me So.Very.Tired…
so difficult, so disheartening, so tiring…
just.so.totally.overwhelming.

I have 2 days worth of meds left.
I need to come up with funds for September…

It’s not easy trying to Survive.

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Tuesday, August 11th, 2009

Bone Scan #1 – Done

Did Bone Scan #1 today… not AS expensive as the Pet/CT #3, but still had to hit the fund… this time for $360.00.  Bone Scan was at Houston Medical Imaging and the first one I’ve done.  It’s necessary, cuz we need to see what is up with the suspected tumors on my spine.

To go back over my story…

From what I’ve been told, the cancer has metastised / spread to my bone, to the vertebra in my lower spine.  We’re not sure just how bad it is cuz I didn’t have a baseline scan done. A baseline would show where I WAS (back “then”), vs where I Am Now (whenever “now” is).

The radiologist’s report from my PET/CT scan #1 (March 10 2009) suggested several times due to “suspected metastisis”, to have a bone scan done, but this was never relayed to me.

PET/CT scan #2 (April 16 2009) showed more specific area of concern, but I had just received a shot of Neulasta (due to chemo), which causes the body’s bone marrow to “go into overdrive” to help recover from high-toxcity chemotherapy.  Such extra activity could be misinterpreted in a PET/CT, but could also, just as easily, be a true metastisis… These areas were identified as spinal tumors at Burzynski Clinic.

My 3rd opinion, from Dr. Emile Salloum (of Christus Spohn Cancer Center in Corpus Christi, Texas) was hopeful that these “suspect areas” were a false positive due to a combination of arthritis and Neulasta.  I’ve never been diagnosed with arthritis though it is very prevalent in my family.  A “false positive” would be the Most Preferred outcome – Of Course!  And I Am Hopeful!  However, I Also have to keep a touch of reality and remember that I was mistreated for 8 months, and that is a long time to be walking the wrong path…

Back to the Bone Scan…

Again, it was a good experience; again Zaki was the tech, and he did a good stick, Not as good as yesterday, which was relatively painful, this one did cause a small prick of discomfort… He gave the infusion… this time I had to wait TWO Hours before testing began!  Mom and I drove around, and found an Awesome Thai restaurant, had lunch, then went back to the Lab.  At about 12:30, the test commenced. That took another hour+.

Again, it was tiring…

Again, I’m hoping
praying
for some good results.
Again.

Mom took photos…
again

(Results HERE)

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