Mom Category

Monday, September 7th, 2009

Back on PB – for now

I was Finally able to pick up a portion of Sodium Phenylbutyrate (PB) on Friday. Was Supposed to pick it up on Thursday, but the Clinic got the info mixed up and then there was some confusion on their end, so I couldn’t pick up the entire month, but will be able to pick up the rest so this coming Wednesday…

Had to pay for what I did pick up and that was 1/2 month at a cost of $2,250.00.

Since I was traveling to Corpus to visit my Folks for the Labor Day holiday, I didn’t want to re-start the meds while I would be on the road, so I started them on Saturday.

I did Not anticipate the reaction.

When I initially started taking the PB (back in May), I took increments of pills until I reached my dosage of 24/daily (6 tabs @ 4x daily, then to 8 tabs @ 3x daily).  When I restarted, I didn’t consider this and simply took my 24 dosage as usual.

By Sunday, I was pretty much down, and spent all Sunday in bed.

It didn’t help matters any that I had words with my Mom, except to be able to stay in bed and away from her.

The PB kicked my butt.  I was exhausted and ached all over. Simple movement was painful and my head pounded like crazy.  My right knee was so tight, I could hardly bend it; all my joints screamed when I moved.  Standing up was excruciating.  I couldn’t even get up for water.

My ride home today (Monday) was miserable for several reasons, but the reaction was a large part of it.  Every bump, every swerve, every motion of the car tore through me.

Thank goodness I was able to sleep much of the way.  I had no choice.

I got home, and went right to bed.

Got up a little while ago for the bathroom and feed the Pups.

So now, I’m back to bed.

and waiting for the inevitable diarrhea…

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Thursday, August 20th, 2009

Oh, Momma Mia

My Mom left this morning… to go back to Corpus.  She stayed with me while I went through Zometa infusion #3.

I don’t know why, but we were really getting on each other’s last nerve this time.  “Why” would most probably be the situation.  It doesn’t seem right, but – as Mr. Sack used to say – “it is what it is”.

Don’t get me wrong – I Love my Mom, Love her with all my heart.  But we are so similar, and we really can clash.
And we are also very different and really can clash  *LOL*

I’m very lucky she is in a position that she can come and stay with me.

Otherwise I’d be alone.
Terrifyingly and heartwrenchingly alone.

It would have been very difficult to go through the sickness and reactions alone… I know this… So I am very grateful that she comes…

Yet we get on each other’s nerves… bitchy, irritatingly on the last nerve.

But there is Lots of Love there.

And I need that

Especially right now.

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Thursday, August 6th, 2009

PET/CT Scan #3 and Bone Scan #1

The time has come,” the Walrus said,
“To talk of many things:
Of shoes–and ships–and sealing-wax–
Of cabbages–and kings–
And why the sea is boiling hot–
And whether pigs have wings.”

The time for me is my 3rd PET/CT Scan

Scan #1 was The Lie

Scan #2 was The Fear

What will Scan #3 be…?

PET/CT Scan #3 will be Monday, August 10
The PET/CT Scan will tell us what is going on with the cancer… if it has shrunk, if some of it has died… or… if it has grown… if it has spread…

Bone Scan #1 will be Tuesday, August 11
The Bone Scan will tell us what is going on with the tumors in my lower spine… and if the metatisis has spread to other areas…

Mom is in town, so I’m not alone

Results should be received by week end.

Please pray…

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Sunday, July 5th, 2009

Reactions

Time to update on my reactions to the meds, overall…

I have a Spray of tiny rashy bumps across my upper chest, and behind and under my ears…

Dry dry skin…

The tips of my fingers are drying out and splitting…
I am getting pimples on my chin…

Diarrhea still…

My big toenails are separating from the nailbed…

My lower back aches most of the time…

And Tired, so very very tired…

So Lovely, and the epitome of beauty and grace.

Geez.This.Sucks.

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Sunday, June 21st, 2009

Happy Father’s Day, Dad…

Happy Father’s Day to my Dad.

Again, like Mother’s Day, this is not at all what any of us had in mind for a Father’s Day, but I am so Very Fortunate to have have you and Mom by my side me on this awful journey

I know that you & Mom are supposed to be enjoying life and being in a “good place”, not having to take care of others.  Both of y’all have given up so much in taking care of your Mother, and Mom’s Mother, and then Mom’s Father and his wife, and now me…

You Know that this I not what I wanted… it was supposed to be Clifford with me, not you & Mom… he, the one you thought of as your own son,  betrayed us all with his empty promises and shallow judgments.

How can I ever say it enough… Dad, Thank You.

Thank You for putting up with Mom being gone so much to come here to care for me, Thank You for putting up with me, Thank You for all you do, Thanks you for “being there”.

Love You, Dad!

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Thursday, May 21st, 2009

Zometa, You Are a Cruel Mistress

So…

Zometa.Kicked.My.Ass.

I was told that I would “probably” experience “slight” flu-like symptoms for a day. What I got was symptoms of Major Flu From Hell.

I ran a fever that went up and down and up and down and up and down – 101.7 was the highest, but it felt like 107 cuz I was burning.

My body ached like I had been beaten with 2x4s.  It took everything I could muster to even turn over in bed.  Going to the restroom was a major ordeal.

Thank Goodness Mom was here to help me out, I’d be lost without her.  Being single sucks, but – realistically – who would be able, or want, to handle this… ~sigh~  Certainly not Clifford, he proved his mettle, and it was not metal.

I am told that the first treatment is the worst, that each one becomes easier. Let’s hope.

I’m back off to bed, still recovering.

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Sunday, May 17th, 2009

Spaghetti Dinner Fundraiser Event (Recap) – May 16 2009

It Was Awesome. Totally and Completely Awesome.

Mom and I arrived at “Christ The Good Shepherd” Church about 2pm and we got to participate in the “transformation”.  It was something to see, something to be a part of!

It started as a large area for receptions – stark and empty.

Then “The Team” took over… John & Mitzi R and Maria and Joseph (2 of their 3 children), Paula S and daughter Bella, Jeannie & John R, Ellen V, Laurie P, Josie & Bill E, Randy & Sharon P, Sean G, Pat S, Holly N, Stacie & Nate G, Hazer W, Vivian H, Nancy W, Russell T, Sam H…  and My Mom.

We brought out tables and chairs and tablecloths and decor…

When finished, it was Spectacular… The theme was “Italian” and the decor reflected a quaint Italian restaurant, complete with the solid red and green, and the red and white checkered tablecloths.  There were centerpieces made of the large cans of tomatoes used in the sauce – cleaned (of course) and stuffed with green, white and red tissue paper and accented with green, white and red balloons (colors of the Italian Flag).  Very Creative! The music (supplied by Laurie P) was very apropos – Frank Sinatra, Dean Martin, et al!

There were balloons Everywhere!  Red, Green and White!  And – of course – Pink and White (colors for breast cancer and bone cancer).

The meal consisted of pasta, and sauce (either Italian sausage or meatless), garlic bread, salad, tea or water and a selection of desserts (brought by the volunteers).  Each table was set with a bowl of pesto and grated cheese.  The meal could be eaten there, or there were “to-go” boxes available.  Seating was for about 100 at a time, and there were also many “to-go” boxes sold.

I had special Teeshirts made for the Volunteers, and we also had Teeshirts (to sell) with “I Helped Someone Survive Breast Cancer” on them.  Thank You to ScreamingTees for the Teeshirts!

Donna M made some Lovely crystal bead, pink ribbon cell phone dangles – they were Beautiful and sold well!

There were 10 or 12 FULL tables of items for Silent Auction!  My co-workers brought items and got gift certificates from local businesses; Audrey R made 3 gift baskets of specialized items (baking, spa and safety), and Laurie P had an Italian “Mystery Box”.  Josie E went to the Master Gardener at Mercer Botanical Gardens and got some plants donated to sell.  Nancy W donated some of her handmade pottery. Personal friends who donated to the Silent Auction were Jim H, Zach M, Donna & Mike M, Virginia & Dean O, Crystal G, Stephanie U and Ms. P.  Their gracious gifts were Much Appreciated!

Towards the end of the evening, Tom (my boss) held a Live Auction of the Silent Auction items that had not sold. That man is So Funny – and he got Everything sold!

My Dad drove in from Corpus Christi to attend – that was Awesome!  Personal Friends who attended were Carol and son, Zach; Christy & Bill; Crystal & Ryan and friend Stephanie; Julie & Mick, Donna & Mike; Donna & Joe; Jim & Sheryl and son, Preston; Tim & Dawn.

The total raised for my treatment / recovery was $8,474.50 – the Silent Auction alone raised $1,520.50!  This was more financial assistance than I had ever considered.  The spiritual and emotional support from this was immeasurable.

All this started as an idea in John R’s head, to do something for me.  From someone I work with, to do something to help me with my situation, with my financial struggle.  An idea that was supported by others within my group and grew.  For me.  Still difficult for me to comprehend that my co-workers, who have known me for only a year – and some for less, did this for me.

John’s mother came up to me and told me that this was the first time that Christ The Good Shepherd has ever allowed something like this to be done, for an individual, and I imagine for someone who was not a member of the congregation…  What an honor for me to know this, what an honor for me to know that this Church thinks so highly of John to allow this.

Thank You is just not, and never will be, enough.

May 16 2009 - Spaghetti Dinner Fundraiser

This event was "dreamed up" by my co-worker, John R. With the support of other co-workers, it grew and became something I will never forget, and am proud, and humbled, to have been associated with. "Thank You" will Never Be Enough.

103 Photos

Here’s the Teeshirts we had…

 

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Sunday, May 10th, 2009

Happy Mother’s Day, Mom…

Happy Mother’s Day to my Mom.

Not quite what any of us had in mind for a Mother’s Day, but I am so Blessed to have have her with me.

Mom, I know this is the time of your life that you and Dad are supposed to be enjoying life, not having to take care of others.  Both of y’all have given up so much in taking care of Dad’s Mother, and your Mother, and then your Father and his wife, and now me…

This I not what I wanted… it was supposed to be Clifford with me, not you… I waited so many years for him, and we all rejoiced in the promises that he made me… but he turned out to be weak and shallow and heartless.

How can I ever say it enough… Mom, Thank You.

Thank You for driving back and forth from Corpus Christi to take care of me, Thank You for putting up with me, Thank you for all you do, Thank You for being here.

Love You, Mom!

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Saturday, May 2nd, 2009

RECAP: American Cancer Society – Relay for Life

The American Cancer Society’s “2009 Relay For Life – Northwest Harris County, TX“, held at the Klein Oak High School was probably the most humbling, inspiring and inspirational events I have ever attended. Event info I previously posted is here.

What is Relay for Life?

It was such an honor to be invited to participate by Best Buy, Store 1072, as their “Honorary Survivors”. Our team was “Firehouse1072″ – named because this particular Best Buy store had 2 fires during it’s construction. It was fondly named the “Firehouse” store by it’s employees.

The “Offical” start time was 7pm, but participants were asked to arrive earlier.  Mom and I arrived at the location a few minutes after 6:00pm. It was Much larger than I had anticipated – the Entire football field was set up with the tents of 66 different different teams! Right away, you could see the common theme of “Luau”, as every team had some type of Hawaiian, Tikki or Luau decor. It was Really Colorful and Very Fun Looking!

There were special activities for the Survivors and Caregivers – Mom is both a Survivor AND a Caregiver… We were able to get a massage, a special dinner and gift bags with goodies.

But the Most Special Thing was walking the “Survivor & Caregiver Lap”.  It was one of the most memorable experiences I have had.  I have never felt such love and support, as we all walked around the track and everyone else lined the track, clapping and cheering us on.  I think I cried the entire lap, I just kept saying “Thank You, Thank You So Much”… and That is Exactly how I felt.
Thank You So Much.

There was also the “Lights Out & Silent Lap” where they dimmed the lights.  The Klein Oaks “Diamond Girls” (girls who help support Klein Oak Programs by assisting with home game activities) positioned themselves on the bleachers and then slowly turned on flashlights they were each holding… and the audience could see that they had spelled out the word “HOPE” in lights… then after a few minutes, they dimmed their flashlights, and you could heard them moving… and when they lit their lights again, they spelled out the word “CURE”.  I Let Out A Big Hoot!!  YES – We HOPE For A CURE!!

There was then the reading of names, a very somber period, but hopefully very healing for some.

Then back to the “business” of fun and raising money…

There were Plenty of fun activities and on-site fundraisers to participate in – lots of cool stuff to purchase. And Lots of food and drink! There was a Silent Auction. It was an awesome experience to get out and socialize with the different teams and participate in their activities. All monies made on-site went into the pot for the final count.

Best Buy’s Team FireHouse had a Fabulous activity area! They brought 2 large flat-screen TVs and had Rock Band set-up on one, and various video games set-up on the other. For a donation, people could play a timed period of either one – Boy those were 2 Very Popular activities!  Team FireHouse also was raffling off a Wii Gift Basket, which had a Wii system and various Wii accessories.  Tickets were $5/each and my Mom was Seriously Selling Those Tickets!!

Team FireHouse also has a caricature table, manned by Josie, who is an Awesome artist! His table was Always busy!

Some of the activities offered by the different teams included a blow-up theater movie screen which showed popular animated movies for kids of all ages, “sumo” (suit) wrestling, a “jail”, to incarcerate your favorite “criminal”, cake walk, roulette-style wheels for spinning for prizes, numerous raffles and so many more to remember… (I’m actually waiting for the official list to be posted so that I can give credits due to all the wonderful on-site fundraiser activities).

Items sold to raise funds were wide and varied. There were Lots of different bracelets – from the “standard” silicone bands to lovely silver and bead creations .  There were All Sorts of inexpensive items to play with - temporary tattoos, whistles, glo-sticks, blinkers…

Event Schedule
Time = = What’s Happening
= = Entertainment/Music
* 6:30 pm = = Comedian
* 7:00 pm = = Opening Ceremony
* 8:00 pm = = Survivor Ceremony Survivor Lap & Caregiver Lap
* 9:15 pm = = Lava Lighters begin making rounds, followed by the Hush Angels
* 9:30 pm = = First Silent Auction section closes; Luminaria Ceremony; Lights out and Silent Lap
* 10:00 pm = = Segue into Fight Back Ceremony Fight Back Lap *Special Guest Appearance: Elvis!*
* 10:45 pm = = Second Silent Auction section closes
* 11:00 pm = = Get Lei’d with Elvis Lap
* 11:30 pm = = Keiki Lap (Hawaiian for Kids; lap honoring kids and youths for their participation)
* 12:00 midnight = = Midnight Madness Lap – anything goes: Hula Dancers, Hula Hoopers or anything involving a hula or hoop or Hula Hotties – both guys and ladies, grass skirts, coconut bras, whatever! Last loud lap!
* 1:00 am = = Hawaiian Shirt/Dress Lap
* 2:00 am = = Wipe Out — Surfin’ USA Lap! (Surf Boards, boogie boards… get your “Moon Doggie” gear!)
* 3:00 am = = Get Lei’d Lap (collect leis; those giving them out can require those receiving to do as they request- sing a song, so a little dance, bark like a dog, donate a buck, etc.)
* 4:00am = = Flip Flop Flap Lap (Wear your weirdest, wildest flip flops – or whatever flip flops you’ve got)
* 5:00 am = = Zombie Lap (Dress the way you feel at 5:00am: Fuzzy slippers, ratty P.J.’s whatever.)
* 6:00 am = = Team Photo Lap before the closing ceremony
= = Closing Ceremony

Final Counts
* Teams: 66
* Participants: 1137

* Dollars Raised: $119,841.31

Top Teams
1 – Leopards for Life ($12,535.00)
2 – Coach K’s Crew ($8,910.00)
3 – Choppin’ Cancer- Phi Theta Kappa ($7,386.49)
4 – TEAM ENDURANCE ($7,155.00)
5 – JB and Me ($6,874.93)

Top Participants
1 – Stephanie Bowden ($2,545.00)
2 – Serenity Glazer ($2,530.00)
3 – Dee Dalager ($2,506.68)
4 – Janean Lyon ($2,260.00)
5 – Kimberly Coopwood ($1,575.00)

It was a long and tiring evening for me, I didn’t make the whole 12 hrs, but we did stay until 1:30am! And Yes – I Did take Lots of pictures to share!!

We had a Great time, and I Sincerely hope I will be able to participate next year…

May 01 2009 - Relay for Life NW Houston

Best Buy #1072 asked me and Mom to be their "Honorary Survivors" for this event. It was the first Relay for Life I've ever attended, and it was one of the most memorable experiences I have ever been fortunate to participate in. HOPE FOR A CURE!!

177 Photos

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Friday, May 1st, 2009

American Cancer Society – Relay for Life

This evening is the American Cancer Society’s “2009 Relay For Life – Northwest Harris County, TX“, held at the Klein Oak High School track.  This will be the first such event that I have attended.  Mom will be coming with, and will also be her first time.

We have been invited by Best Buy, Store 1072, to be their “Honorary Survivors”.  Our team is “Team Firehouse” – What An Honor!

We are Really looking forward to this evening. It’s a 12hr event, so I’m not sure how long I will be able to last, but will stay as long as we can!  And Of Course, I’ll take Lots of pictures to share!!

For more info on this event, Click Here


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