excitement Category

Monday, January 25th, 2010

eBAY: Mission Accomplished!

I have posted 15 items onto eBay!
Under my TeamDenise eBay ID
YAY!
It was a
Struggle to get
Everything right
Correctly
Submitted
Revised
Retracted
Resubmitted
But now
I’ve got my template
Corrected
Completed
Saved
And its all
Done and
Good for
Future listings

I had forgotten how much
Fun it was to be
Selling

And I have
My first bid!

I have more to
Sell
More photos to
Take
More items to
List
Which I am already
Working on

I had forgotten how much
Fun it was!!

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Tuesday, December 29th, 2009

Radio Interview, Its Your Health – Done!

The interview on “Its Your Health” radio was this morning.
A few minutes ago.
Wow.
The time flew
and there was so much I didn’t get to say.

Information that I wanted to share.
Information about my situation.
Information that I have gone through
Information that may help others.
.

My monthly medical bills – depending on what tests I need done – are between $15,000 and $17,000.
Yes – Per.Month.
The cost for the 5 medications that I am on is almost $15,000 per month
Monthly infusion and blood tests – tack on an additional $400.
PET / CT scan adds $1,200 every 3 months.

With the PAPs (Patient Assistance Programs) that I am qualified for, my monthly medicine bill goes “down” to $4,500, plus the cost of the tests.

Not easy for a currently unemployed temp secretary who is doing it all alone…

I really wanted to touch on the PAPs – Patient Assistance Programs. These are SO Important!! These are “offered” by the drug companies for people in need – that would be me. If you are in need, PLEASE contact the drug company and ask if there is a Patient Assistance Program that you would qualify for. Most drugs have some form of a PAP.

When you go for appointments or tests, Be Sure to tell them your story – that you have no insurance, that your insurance doesn’t cover this or that or whatever. Most medical facilities offer discount rates for people in need.

As I said – now is Not the time for pride.
Ask for help.

There are people out there who WILL help you.
People who Want to help.
Regardless if you are a precious toddler, a young adult, or – like me – an “old fat gal”.
People Will Help.

I am here, asking for help.

I have gone through my savings and the small inheritance I got from my Grandfather ($30,000) to purchase a home. My own home. My first home.
Gone.

Now I am dependent on fundraisers and donations.
The kindness of Family, Friends and Strangers.

The kindness of people helping.

Each month is a struggle to pay for my meds.
Each month is terror that I will not be able to afford to continue to fight this battle.
I do Not want to die.
Not yet…

Thank You So Very Much to Lisa Davis! and “Its Your Health” radio for giving me the opportunity to get my info out there!!

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Monday, December 28th, 2009

UPDATE #4: Radio Interview – Its Your Health

The interview on “Its Your Health” radio has been rescheduled to Dec 29, 8:30-8:50am CST.

That’s tomorrow.
Woo Hoo!!
Thank You Lisa!

TeamDenise!

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Wednesday, December 23rd, 2009

UPDATE #2: Radio Interview – Its Your Health

The rescheduled interview on “Its Your Health” radio has been rescheduled to Dec 24, 9:50-10:10am EST.

That’s tomorrow.
TeamDenise!

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Monday, December 21st, 2009

Radio Interview – Its Your Health

I am being interviewed on a Boston radio station!

It’s pretty exciting…

The show is “Its Your Health” and the host is Lisa Davis – a gal who I connected with via Facebook. Don’t ask me how cuz I don’t remember, but she seems nice.

But I do remember that she mentioned that she wanted to interview me about my battle without insurance.

She remembers me and wants to share my story.

My story.

She also has interviewed Suzanne Somers several times, regarding her new book, Knockout, which addresses cancer and specifically mentions Dr. Burzynski and The Burzynski Clinic. So I will be happy to share my tests results.

I’ve known for about a month that this interview might be upcoming, but didn’t have a firm date. There was talk of “sometime in January”, so I’ve been waiting…
Waiting, waiting waiting…
Hoping
but not expecting.

Now I know.
The interview will be tomorrow – Dec 22 – at 10:50 EST.

Tomorrow
I’m nervous…
Need to get ready.
I’m excited…
Excited to get the word out some more
TeamDenise!

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Wednesday, September 2nd, 2009

Vacation!

Labor Day weekend is coming up and I wasn’t sure if I’d be able to go down to Corpus to visit my Folks…

I got a Friend to check on the Pups all weekend

I’ll pick-up my 1/2 month of PB on Thursday

I’m riding to Corpus with Friends, Virginia & Dean on Friday, after work

Dean promises some Awesome Margaritas!!

Looking forward to a Nice Relaxing Fun Weekend!!!

Wooooooooo!!!

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Wednesday, September 2nd, 2009

Test Results – Tumor Markers #4

I COULDN’T WAIT TIL THIS EVENING TO POST THIS!!!

Last Friday, I had the bloodwork drawn to track my tumor markers.  It was draw #4.   I’ve been having Very Good Results…

I now have the results of the August 27 draw… this draw was for both the monthly tests (most specifically my CEA Tumor Markers) AND for the 3-month tests, which include my HER2 and EGFR Numbers…

On April 15, my baseline CEA tumor markers were 63.1 ng/mL (nanograms per milliliter)

On June 03, my 2nd draw CEA tumor markers were 35.9 ng/mL

On July 03, my 3rd draw CEA tumor markers were 12.8 ng/mL

My CEA numbers from the August 27 draw are 3.9 ng/mL

3-POINT-FREAKING-9!!!!!!

Norm is 0.0 – 3.0 ng/mL; levels higher than 3 ng/mL are not considered normal.

3.9 is Pretty Freaking Close To Normal!!

The numbers Just Keep Dropping!  I can’t help but be excited!!  Still I wish I was confident with just how much this meant, but this (CEA: The Test) has answered Some questions…

I’m Still hoping that this all means Something Good… Please mean Something Good…

My Other Numbers as of Aug 27 2009 blood test results:
CA-1256 U/mL (Reference @ 0-35) – an 11 point DECREASE – down from 15 U/mL from July’s draw
CA 15-3: 16 U/mL (Reference @ <32) – a 17 point DECREASE – down from 33 U/mL from July’s draw
CA 27.29 (see CA15-3 above): 28 U/mL (Reference @ <38) – a 12 point DECREASE – down from 40 U/mL from July’s draw

I’m thinking those numbers are looking Pretty Dang Good!

More Numbers from the tests I take every 3 months:
I’m not sure about what are good levels here, but this is what I’ve got…

EGFR (Epidermal Growth Factor Receptor)
From August 2009 draw – 39
From April 2009 draw – 86
A drop of 47

HER2 (Human Epidermal Growth Factor Receptor)
From April 2009 draw – 2.8
From August 2009 draw – 8.0
An increase of 5.2, is this good…?  I’m thinking an increase can’t be good… and such a large increase, more than double…? I DO know that I’m HER2 negative, and that’s a good thing to be.  But can you go from negative to positive…?  Would that increase be an indication?

Still vizualizing my Dragons with their light-saber wielding Riders!

Rich – I know that you’re a nurse…
Molli – you work for MD Anderson..
Either of y’all have any input / insight…?
PLEASE…?

What Is HER2, How Is It Tested, And Is It Tested On Invasive And Non-Invasive Breast Cancer?

Is your breast cancer HER2+? Further your understanding of HER2.

Read about HER2 and the importance of knowing the tumor’s HER2 status.

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Friday, August 28th, 2009

Fundraiser – A Little (Info) Help From My Friends…

Dear Friends,

I have been blessed with an Awesome opportunity for a breast cancer fundraiser. It’s something that will fairly “easy” for me to work at, accomplish a lot and should be fun for everyone.  And if it’s successful, then I’ll have some financial breathing room… so I’m Really Excited!

I do, however, need some Help From My Friends…

I need names of celebrities; these people have to be alive and functioning. Examples –

* Actors, directors, comedians…
* Artists, comic book creators / designers…
* Athletes – swimming, tennis, gymnastics, track…
* Authors…
* Cooks…
* Couples…
* Entrepreneurs…
* Game designers…
* Musicians – any genre of music
* NASCAR…
* Newscasters and interviewers…
* Politicians…
* Rodeo…
* Scientists, inventors…
* Sports teams / players – football, baseball, basketball, hockey, soccer…
* TV Personalities…
* ETC, ETC, ETC!

If the person might be considered a bit obscure, please identify who it is.

I need a well-rounded list and thought this would be the best way to get variety.

If you know of someone and have a means to contact them, please mention this via a private email, if necessary (denise@TeamDenise.org).

Ok, let’s see what y’all can come up with!!

Much Thanks and More to Come,

denise
Surviving…

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Thursday, August 13th, 2009

ARTICLE: Drug Compound Kills Breast Cancer Stem Cells

This is AWESOME info!!  Bring It On!!

Drug Compound Kills Breast Cancer Stem Cells

“CHICAGO (Reuters) – U.S. researchers have discovered a compound that can kill breast cancer stem cells, a kind of master cancer cell that resists conventional treatment and may explain why many cancers grow back, they reported on Thursday.

The discovery came using a new method of screening for drugs that specifically target and kill cancer stem cells, and it could be used to find drugs targeting other cancer stem cells as well, they said.

Many teams have been looking for ways to destroy these master cancer cells in hopes of making cancer easier to cure.

“There is a lot of evidence to suggest now that these cells are responsible for many of the recurrences that are observed after treatment has stopped,” Piyush Gupta of the Massachusetts Institute of Technology and the Broad Institute, whose study appears in the journal Cell, said in a telephone interview on Thursday.

The problem is that cancer stem cells are rare and difficult to study in the lab because they quickly change into other types of cells. And they are hard to kill.

“It wasn’t clear it would be possible to find compounds that selectively kill cancer stem cells,” Gupta said in a statement. “That’s what we did.”

To study the cells, Gupta’s team first devised a method for stabilizing cancer stem cells in the lab and getting them to multiply. They then tested them against 16,000 natural and commercial chemical compounds to see which ones were able to kill the cancer stem cells specifically.

That turned up 32 contenders.

They narrowed down this list to a handful of chemicals, and tested these in the lab and in mice.

A chemical called salinomycin hit the target. It was 100 times more potent at killing breast cancer stem cells than Bristol-Myers Squibb Co’s cancer drug Taxol, or paclitaxel.

Cancer stem cells treated with salinomycin were far less able to start breast cancers when injected into mice than cancer stem cells treated by paclitaxel. And the treatment also appeared to slow the growth of tumors in the mice.

Gupta said it is not clear if salinomycin will emerge as the best drug compound for killing breast cancer stem cells — or that it will be safe to use in people with cancer.

But the study offers a new roadmap for drug companies to isolate and test compounds capable of killing the cells.

“We now have an approach that can be used very systematically to find such compounds,” he said.

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