Burzynski Clinic Category

Monday, December 21st, 2009

Christmas Party – Burzynski Clinic

This afternoon was the Christmas Party at The Burzynski Clinic, and I was invited.

I was expecting a simple, informal affair.

I was surprised.
Pleasantly surprised.

And glad that I didn’t bring a plate of cookies like I had planned!

It was held in the Clinic’s new conference room. There (seemed to be) about 20 large circular tables with 8 (or 9?) people per table. Nice small, festive centerpieces on each table.

Dr. Burzynski made a nice speech about the Clinic and its repair from the Hurricane damages, and the new medical and clinical services offered. Then a priest lead a devotional prayer. There were also short speeches made by several other Clinic staff. It was nice – very heartfelt, but not too long.

I saw a lot of staff, some patients that I had met previously and lots of people who I had no idea if were staff, family or patients or guests. But there were a Lot of everyone!

I ran into Dr. Deleon outside of the room, so she brought me to a table of some of her new patients. I got to meet some nice people and we shared our stories… Carol (metastatic colon cancer) and her Hubby; Christina (metastatic colon cancer) and her Hubby, Walt; Delilah and her adult son (brain cancer). All were from out of town, I hope to hear from them on their progress!

I was late, so the appetizers had already been served to each table – a basket of sliced bread, a plate of rolled meats with cheese slivers and grape tomatoes. Also a plate of pickled herring (?) with a sweetened onion relish. It was quite good.

Then they cleared the plates and brought around bottles of champagne.
Oh Yum :-)

And opened the buffet line, which was held in a very narrow side room. That part was not well thought out, as we had to enter and exit through the same door and, as mentioned, the room was fairly narrow.

The food on the buffet line was delicious… There was a Spring Mix salad, green bean casserole, rice with cranberries and pine nuts, baked salmon with a Hollandaise sauce, roast beef with cream gravy, mashed potatoes, uzska (small Polish-style perogies stuffed with a mushroom mixture; uzska which means “little ear” or similar), roasted beef carver with green herb sauce.

For dessert there was Makowiec (Poppy Seed Roll cake) and Pączki (a closed donut filled with cranberry marmalade), and coffee and assorted teas.

It was all really Very good!

All in all, a very nice event.

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Monday, December 21st, 2009

UPDATE: Radio Interview – Its Your Health

The interview on “Its Your Health” radio has been canceled due to “technical difficulties”. With the bad weather that they are having up North, I’m not surprised…

Hopefully Lisa can schedule me in another time soon!

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Monday, December 21st, 2009

Radio Interview – Its Your Health

I am being interviewed on a Boston radio station!

It’s pretty exciting…

The show is “Its Your Health” and the host is Lisa Davis – a gal who I connected with via Facebook. Don’t ask me how cuz I don’t remember, but she seems nice.

But I do remember that she mentioned that she wanted to interview me about my battle without insurance.

She remembers me and wants to share my story.

My story.

She also has interviewed Suzanne Somers several times, regarding her new book, Knockout, which addresses cancer and specifically mentions Dr. Burzynski and The Burzynski Clinic. So I will be happy to share my tests results.

I’ve known for about a month that this interview might be upcoming, but didn’t have a firm date. There was talk of “sometime in January”, so I’ve been waiting…
Waiting, waiting waiting…
Hoping
but not expecting.

Now I know.
The interview will be tomorrow – Dec 22 – at 10:50 EST.

Tomorrow
I’m nervous…
Need to get ready.
I’m excited…
Excited to get the word out some more
TeamDenise!

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Friday, December 18th, 2009

Zometa Infusion #7

Got my 7th Zometa infusion earlier today, Mom was not with me as Dad had his 2nd rotator cuff surgery on Tuesday and she needs to be with him.

* Number 1 was at Burzynski Clinic. It hit me hard
* Number 2 was at North Cypress Ambulatory Infusion Clinic. Thank goodness the 2nd infusion was not that bad
* Number 3 was at North Cypress Ambulatory Infusion Clinic. Again, it was not that bad!
* Number 4 was at North Cypress Ambulatory Infusion Clinic. Again, it was not that bad!
* Number 5 was at North Cypress Ambulatory Infusion Clinic. Again, it was not that bad, just tiring
* Number 6 was at North Cypress Ambulatory Infusion Clinic. Again, it was not that bad, just tiring

And, today, Number 7 was at North Cypress Ambulatory Infusion Clinic. So far it has not been bad, just tiring.

Telia, one of the nurses, took a couple of photos. Not as many as Mom takes though, which will make it much easier to edit through.

I didn’t cry this time, but I am tired…

I saw Marvin, a gentleman I met last time. He is undergoing chemo for colon cancer. He’s a very nice man and we talked for a bit. He is going through some personal issues related to his cancer and treatment. This disease cancer touches – damages – so many parts of our lives. It sucks.

I also had the blood drawn for my monthly lab work, my tumor markers… Should get those results early next week. HOPING they continue to show improvement!

The TOTAL of my charges – receiving the Zometa, compounding the Zometa for infusion, infusion procedure utilizing my port AND the necessary bloodwork to access my levels and tumor markers was $320.00. Plus $15 each for the 5 blood tests. Again, out of the fund. My dwindling fund…

Thanks to North Cypress Medical Center, Ambulatory Infusion Therapy Center Nurses for their kindness!

I went to Christine & Rob’s and had dinner and hung out. We played games, then I came home and fixing to go crash.

To overview:

ZOMETA is (also) used to treat patients with other cancers—including breast‚ lung and prostate cancer—that have spread to the bones‚ a process called bone metastasis. When cancer has spread to the bone‚ treatment with ZOMETA helps to protect bones and may reduce or delay such complications as:
* Bone fracture
* Need for radiation and/or surgery to bone
* Spinal cord compression

Wednesday, December 16th, 2009

Xeloda Resolved


Got into Texas Health and Human Resources today, and the lady I saw there said that she was pretty sure I would be denied for Medicare.

That’s good cuz I don’t want to loose my Xeloda PAP.

I called Xeloda and brought my case up to-date. They are shipping out a new supply.
That’s good cuz I am almost out…

Some good stuff going on…

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Saturday, December 5th, 2009

Splitting Hairs and Walking on Eggshells

Only its not hairs that are splitting,
it’s now the skin on my feet that is splitting.
The past 3 weeks it was my fingers – spits on my fingertips and along my cuticles that made it necessary to wear band-aids and finger cots to protect my fingers.

Now it is my feet.
Especially my heels
Painful splits

Until now, it seemed that I might be able to “dodge” the Hand-Foot Syndrome that is one of the side effects of the Xeloda that I’m taking.

I’m slathering my feet with cream and aloe gel and then sleeping with socks over all that.
Offering some relief, but still is painful.

I’m literally walking on eggshells.
At least it Feels like it.

Painfully painfully so…

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Friday, November 20th, 2009

Zometa Infusion #6 Today

Got my 6th Zometa infusion earlier today, Mom was with me.

Number 1 was at Burzynski Clinic. It hit me hard
Number 2 was at North Cypress Ambulatory Infusion Clinic. Thank goodness the 2nd infusion was not that bad
Number 3 was at North Cypress Ambulatory Infusion Clinic. Again, it was not that bad!
Number 4 was at North Cypress Ambulatory Infusion Clinic. Again, it was not that bad!
Number 5 was at North Cypress Ambulatory Infusion Clinic. Again, it was not that bad, just tiring

And, again, Number 6 was at North Cypress Ambulatory Infusion Clinic, so far is not bad, just tiring.

This time I had Mom take a a photo of the infusion needle – I didn’t look at it though.

I didn’t cry this time, but I am tired… how do people do this for years?

I also had the blood drawn for my monthly lab work, my tumor markers… Should get those results early next week. HOPING they continue to show improvement!

The TOTAL of my charges – receiving the Zometa, compounding the Zometa for infusion, infusion procedure utilizing my port AND the necessary bloodwork to access my levels and tumor markers was $320.00. Plus $15 each for the 5 blood tests.  Out of the fund.  What is left…

Thanks to North Cypress Medical Center, Ambulatory Infusion Therapy Center Nurses for their kindness!

When we got home, I just kinda hung out cuz I knew my joints and muscles would be aching “soon”…

To overview:

ZOMETA is (also) used to treat patients with other cancers—including breast‚ lung and prostate cancer—that have spread to the bones‚ a process called bone metastasis. When cancer has spread to the bone‚ treatment with ZOMETA helps to protect bones and may reduce or delay such complications as:
* Bone fracture
* Need for radiation and/or surgery to bone
* Spinal cord compression

Thursday, November 19th, 2009

PET/CT Scan #4 – Done

Had PET/CT Scan #4 today, every three months and this was the time… the third one at Houston Medical Imaging. Again, the cost was $1,200.00, out of the fund… ouch.  Yep, a financial hit.

It was another good experience; Juliette was the tech this time, though we did get to see Zaki while there – they are both such nice people.  Congrats to Juliette & Diego on the birth of their new daughter – she is Beautiful!  Mom and I talked with them both for a bit about their new addition, they are so proud!

Back to business – the stick was good and easy, I hardly felt anything! Juliette gave the infusion… again, I had to wait a period of time- around an hour, and then the test commenced. That took another 40 minutes or so. Overall, it was tiring…

PET Scan #3 (and the Baseline Bone Scan) were also done at Houston Medical Imaging, which gave results in a crisp, clear, and color, image.
PET Scan #2 was also done at Houston Medical Imaging, which gave results in a crisp, clear, and color, image.
PET Scan #1 was not such a good image, leaving the results with lots of questions, and recommendations.

Again
I’m hoping
praying
for some good results.

(Results will – of course – be posted when I get them)

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Wednesday, November 18th, 2009

Heady Presumptions

The prescription for steriods is long completed, but I’m still having some soreness in my lymph nodes under my neck and the headaches are coming and going. Yes – headaches are side effects of several of the meds that I am taking, but it just seems that the headaches have increased lately.  More in number and more severe in pain.

It’s scary.
I’m scared.
My head hurts

I have a PET scan coming up tomorrow, so – depending on the results – might discuss having a head/brain scan run in the near future. I realize that the cancer spreads in an “anticipated path” – bones, liver, then to brain. Hopefully the PET will show that my liver is still clear, so we can Presume that my brain is clear.

Presume…
What a brave word
to Presume.
Almost like Faith.

Presuming Faith.

My head hurts.

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Monday, November 16th, 2009

Antineoplastons

There is So Much controversy around Dr. Burzynski and his antineoplastons.  Seems to me, that a treatment that spares the body the ravages of chemo, while providing good results should be #1 on the list of the drug companies to explore, instead of attacking the Dr who has brought this treatment to light…

Antineoplaston Therapy

HOW ANTINEOPLASTONS WORK

(Dr. Burzynski believes that) antineoplastons are nontoxic, naturally occurring peptides, amino acid derivatives, and organic acids that fight cancer with few if any side effects. Traditional radiation therapy and chemotherapies poison cancer cells and healthy cells as well; antineoplastons cause no harm to healthy cells. Although the detailed mechanism by which antineoplastons work is unknown, they may act as biochemical microswitches to turn off the genes that cause cancer, called oncogenes, and activate the genes that fight cancer, called tumor suppressor genes.

Because these drugs are harmless to healthy cells the body can be flooded with antineoplastons, and only cancer cells are affected. Patients typically carry a small pump that delivers antineoplastons directly into the bloodstream at regular intervals. Some patients take capsules orally.

I am Literally Betting My Life on This Treatment…








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