Gene Therapy Drug Reactions Category

Sunday, January 24th, 2010

Lessening

I woke this morning
with no headache
and no numbness
Yay.

Though my brain feels “sore”

My muscles and joints
don’t hurt as bad
nor does my breast
though there is still pain there.
still…

I am working on my eBay today…

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Sunday, January 10th, 2010

Weather

It has been So Dang Cold here, I can barely function.

I went out this afternoon, and walking to and from the Explorer left me chilled deep.

The cold weather didn’t used to bother me so much, I actually used to enjoy it. But since the chemo, and this current treatment, I feel the cold just biting into my body.

Can’t wait til it warms up some…

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Monday, January 4th, 2010

Lip Service

Side effects – drying and splitting

First it was my fingers – dry and splitting

Then my toes and heels – dry and splitting

bandages, neosporin
and
slathering with creams
Udderly_Smooth
Eucerin Calming creme
Curél Ultra Healing

when one stops working
switch to the other
constant rotation

Now…

my lips – dry and splitting
raw
clown mouth

neosporin
and
slathering with balm
Burt’s Bees
Chapstick Naturals
Blistex

when one stops working
switch to the other
constant rotation

each day is
an adventure
more adventure.

My poor lips...

My poor lips...

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Saturday, December 5th, 2009

Splitting Hairs and Walking on Eggshells

Only its not hairs that are splitting,
it’s now the skin on my feet that is splitting.
The past 3 weeks it was my fingers – spits on my fingertips and along my cuticles that made it necessary to wear band-aids and finger cots to protect my fingers.

Now it is my feet.
Especially my heels
Painful splits

Until now, it seemed that I might be able to “dodge” the Hand-Foot Syndrome that is one of the side effects of the Xeloda that I’m taking.

I’m slathering my feet with cream and aloe gel and then sleeping with socks over all that.
Offering some relief, but still is painful.

I’m literally walking on eggshells.
At least it Feels like it.

Painfully painfully so…

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Wednesday, November 18th, 2009

Heady Presumptions

The prescription for steriods is long completed, but I’m still having some soreness in my lymph nodes under my neck and the headaches are coming and going. Yes – headaches are side effects of several of the meds that I am taking, but it just seems that the headaches have increased lately.  More in number and more severe in pain.

It’s scary.
I’m scared.
My head hurts

I have a PET scan coming up tomorrow, so – depending on the results – might discuss having a head/brain scan run in the near future. I realize that the cancer spreads in an “anticipated path” – bones, liver, then to brain. Hopefully the PET will show that my liver is still clear, so we can Presume that my brain is clear.

Presume…
What a brave word
to Presume.
Almost like Faith.

Presuming Faith.

My head hurts.

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Wednesday, November 4th, 2009

Gaseous

I really am tired of…

Excuse me!

Pardon me!

I am So Sorry!

Oops..

How Much embarrassment can a Gal endure?

I Swear, if I have Any More Gas come from my Body, I will Simply Float Away.

Gassy Me

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Monday, November 2nd, 2009

Recapping the Side Effects

Its been a while since I’ve talked about the side effects that I experience due to the treatment that I’m taking.
This does Not mean that they have gone away.

Nope… still having them. Don’t wanna “harp” on them cuz everyone has their own problems, and these just happen to be mine at this point in time… No one likes to hear constant complaining.

So I am… just “getting used to them”.
BAM
Getting.Used.To.Them.

Still having diarrhea, in various “stages”.

BAM
I’ve long “gotten used” to it.

I’ve had minor symptoms of Hand-Foot Syndrome, luckily nothing major to-date… still find that immersing my hands in cool water regularly offers a great deal of relief and feels good. Also using a Quality hand cream, like UdderlySmooth, works well.

BAM
“Getting used” to it…

My skin is still dry, but not as bad as before, though it does vary in stages”… I’m not longer using Pond’s Rejuveness on my face, I’m now using Olay Regenerist serum, but am still using Nivea SOS Lip Care for my lips. I am no longer itching so much All Over, but I am still having Some itching. Can’t use Benadryl during the day cuz it knocks me right out.

BAM
I‘m “getting used” to it…

The Traceva / Xeloda rash seems to be kept under control with the Evening Primrose Oil. I do still have a slight small-pimply rash across my chest, behind my ears on my neck and across my lower back, but it is MUCH less bothersome than before.

BAM
I‘m “getting used” to it…

So… let’s just go over the side effects that I am experiencing… these are not all that could happen, these are “just” the ones that I am currently dealing with…

From the Xeloda:
* Diarrhea
* Stomatitis (mouth and throat sores)
* Abdominal (stomach area) pain
* Hand-and-Foot syndrome (pain, swelling or redness of your hands or feet that prevents normal activity)
* Dry, itchy or discolored skin
* Rash
* Nail problems
* Tiredness
* Weakness
* Dizziness
* Headache
* Pain (such as chest, back, joint, and muscle)
* Difficulty sleeping

BAM
I‘m “getting used” to it…

From the Zolinza
* Stomach and intestinal problems, including diarrhea, nausea, vomiting, loss of appetite, constipation and weight loss
* Tiredness
* Dizziness
* Headache
* Changes in the way things taste and dry mouth
* Muscle aches
* Cough
* Itching

BAM
I‘m “getting used” to it…

From the Tarceva
* Fatigue
* Rash
* Diarrhea
* Mood or mental changes
* Muscle pain or twitching
* Nervousness or restlessness
* Lower back, side, or stomach pain
* Unusual tiredness or weakness
* Joint pain
* Unusual bruising
* Irritability
* Muscle cramps

BAM
I‘m “getting used” to it…

from the Sodium Phenylbutrate :
* Mood or mental changes
* Muscle pain or twitching
* Nervousness or restlessness
* Lower back, side, or stomach pain
* Unusual tiredness or weakness
* Chills; fever
* Sore throat
* Unusual bleeding or bruising
* Dizziness
* Dryness of mouth
* Fast, slow, or irregular heartbeat
* Increased thirst
* Irritability
* Muscle cramps
* Abdominal or stomach pain
* Headache
* Depression
* Skin rash

BAM
I‘m “getting used” to it…

from the Zometa:
* Fatigue
* Bone pain
* Headache
* Shortness of breath
* Joint, and muscle pain

Major BAM from 5 sources…
I‘m “getting used” to it…

I‘m “getting used” to it…?

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Sunday, October 18th, 2009

Abnormally Abnormal Aches and Pain

I’ve had an “abnormal” amount of muscle aches and joint/bone pain lately.

The normal side effects of the meds I’m taking

is abnormal muscle aches and joint/bone pain

and I have been having an abnormal amount of abnormal

especially in the area of the osteoblastic lesions

I’m scared

abnormally.

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Friday, October 16th, 2009

Zometa Infusion #5 Today

Having my 5th Zometa infusion later today, around 2pm…  Mom is driving in and going with – Yay!

According to the info and past experience, the side effects should be minimal, not like the first one

Monday, October 5th, 2009

The Waiting Game

Today is the start of my one week off of the Xeloda since I was able to get back on – I’m back to the 2 weeks on / 1 week off schedule.

When I first started this drug, it took a few weeks for the side effects to become fully evident, so I’m waiting now…

waiting waiting…

Due to the Xeloda PAP Eligibility Denial, I’ve had to apply to the Texas Health and Human Services to see if I qualify for assistance, which means I would loose ALL my PAP medication benefits if I do, so I’m waiting now…

waiting waiting…

My whole life lately is one big waiting game

not the kinda game I like to play







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