I woke this morning
with no headache
and no numbness
Yay.
Though my brain feels “sore”
My muscles and joints
don’t hurt as bad
nor does my breast
though there is still pain there.
still…
I am working on my eBay today…
Gene Therapy Drugs Category
Sunday, January 24th, 2010
Lessening
Tags: aches and pains, breast pain, eBay, headache
Thursday, January 14th, 2010
BURZYNSKI Article: Life Extension Magazine. May 2004
This is an interesting read…
AN INTERVIEW WITH DR. STANISLAW BURZYNSKI
Unlocking the Mystery
of Antineoplastons
A Natural Anticancer Agent
by Terri Mitchell
The following statement concerns me, I think I need to see if I can get some type of response to it from the Drs.
Do I have the p53 tumor suppressor gene?
This article was printed in 2004, so Hopefully things have changed, though in the world of medical advances, it seems that years are mere days…
“The use of antineoplastons to treat breast cancer has not been as successful as hoped. Dr. Burzynski believes this is because the antineoplastons currently in use target the p53 tumor suppressor gene, a gene not frequently associated with this type of cancer.“
Tags: News article
Sunday, January 10th, 2010
Weather
It has been So Dang Cold here, I can barely function.
I went out this afternoon, and walking to and from the Explorer left me chilled deep.
The cold weather didn’t used to bother me so much, I actually used to enjoy it. But since the chemo, and this current treatment, I feel the cold just biting into my body.
Can’t wait til it warms up some…
Friday, January 8th, 2010
Xeloda – Fluxxed Again
Just when I thought the issues with Xeloda were resolved, I am told that my prescription is on hold until I provide signed acknowledgment of notification of a change in the Roche Foundation.
In March 2009, Roche and Genentech became one company and this led to some changes. As of December 31 2009, Roche ceased to distribute free medicine. Starting January 01 2010, I have the option to be supported by the Genentech Access To Care Foundation, which will provide access to Roche products previously provided by the Roche Foundation. This notification was mailed out on January 04 2010.
In order to transition with no interruption in my medical treatments, I need to sign and return the GATCF Patient Authorization and Notice of Release of Information (PAN) form that will be provided to me. They are supposed to have included a self-address, stamped envelope for convenience. That was very nice consideration.
Thankfully, the prescription was extended for this month, and these limits won’t be effective til next month. As soon as I receive the forms, I will fill them out and return them!
I hope this change does not effect my Genentech PAP for Tarceva and I can’t afford to loose my Xeloda PAP either.
A state of constant flux and I’m back on the roller coaster…
Tags: Genentech, Roche, Tarceva, Texas Health and Human Resources, Xeloda
Monday, January 4th, 2010
Lip Service
Side effects – drying and splitting
First it was my fingers – dry and splitting
Then my toes and heels – dry and splitting
bandages, neosporin
and
slathering with creams
Udderly_Smooth
Eucerin Calming creme
Curél Ultra Healing
when one stops working
switch to the other
constant rotation
Now…
my lips – dry and splitting
raw
clown mouth
neosporin
and
slathering with balm
Burt’s Bees
Chapstick Naturals
Blistex
when one stops working
switch to the other
constant rotation
each day is
an adventure
more adventure.
My poor lips...
Tags: Chapped lips
Wednesday, December 23rd, 2009
UPDATE #3: Radio Interview – Its Your Health
INTERVIEW UPDATE #3: Latest update to last update from Lisa Davis of “Its Your Health Radio“:
“No shows tomorrow (Dec 24) due to technical difficulties. Sorry again Denise. Everyone have a great holiday!”
Soooo… my radio interview is postponed again ~sigh~ TeamDenise…
HOPING that my time will come.
Will be Grateful when it does!
Tags: Dec 2009 interview, interview, It's Your Health Radio, Its Your Health, Lisa Davis, radio interview
Wednesday, December 23rd, 2009
UPDATE #2: Radio Interview – Its Your Health
The rescheduled interview on “Its Your Health” radio has been rescheduled to Dec 24, 9:50-10:10am EST.
That’s tomorrow.
TeamDenise!
Tags: Dec 2009 interview, interview, It's Your Health Radio, Its Your Health, Lisa Davis, radio interview, Suzanne Somers
Monday, December 21st, 2009
UPDATE: Radio Interview – Its Your Health
The interview on “Its Your Health” radio has been canceled due to “technical difficulties”. With the bad weather that they are having up North, I’m not surprised…
Hopefully Lisa can schedule me in another time soon!
Tags: Dec 2009 interview, interview, It's Your Health Radio, Its Your Health, Lisa Davis, radio interview
Monday, December 21st, 2009
Radio Interview – Its Your Health
I am being interviewed on a Boston radio station!
It’s pretty exciting…
The show is “Its Your Health” and the host is Lisa Davis – a gal who I connected with via Facebook. Don’t ask me how cuz I don’t remember, but she seems nice.
But I do remember that she mentioned that she wanted to interview me about my battle without insurance.
She remembers me and wants to share my story.
My story.
She also has interviewed Suzanne Somers several times, regarding her new book, Knockout, which addresses cancer and specifically mentions Dr. Burzynski and The Burzynski Clinic. So I will be happy to share my tests results.
I’ve known for about a month that this interview might be upcoming, but didn’t have a firm date. There was talk of “sometime in January”, so I’ve been waiting…
Waiting, waiting waiting…
Hoping
but not expecting.
Now I know.
The interview will be tomorrow – Dec 22 – at 10:50 EST.
Tomorrow
I’m nervous…
Need to get ready.
I’m excited…
Excited to get the word out some more
TeamDenise!
Tags: Dec 2009 interview, interview, It's Your Health Radio, Its Your Health, Lisa Davis, radio interview, Suzanne Somers
Friday, December 18th, 2009
Zometa Infusion #7
Got my 7th Zometa infusion earlier today, Mom was not with me as Dad had his 2nd rotator cuff surgery on Tuesday and she needs to be with him.
* Number 1 was at Burzynski Clinic. It hit me hard…
* Number 2 was at North Cypress Ambulatory Infusion Clinic. Thank goodness the 2nd infusion was not that bad…
* Number 3 was at North Cypress Ambulatory Infusion Clinic. Again, it was not that bad!
* Number 4 was at North Cypress Ambulatory Infusion Clinic. Again, it was not that bad!
* Number 5 was at North Cypress Ambulatory Infusion Clinic. Again, it was not that bad, just tiring
* Number 6 was at North Cypress Ambulatory Infusion Clinic. Again, it was not that bad, just tiring
And, today, Number 7 was at North Cypress Ambulatory Infusion Clinic. So far it has not been bad, just tiring.
Telia, one of the nurses, took a couple of photos. Not as many as Mom takes though, which will make it much easier to edit through.
I didn’t cry this time, but I am tired…
I saw Marvin, a gentleman I met last time. He is undergoing chemo for colon cancer. He’s a very nice man and we talked for a bit. He is going through some personal issues related to his cancer and treatment. This disease cancer touches – damages – so many parts of our lives. It sucks.
I also had the blood drawn for my monthly lab work, my tumor markers… Should get those results early next week. HOPING they continue to show improvement!
The TOTAL of my charges – receiving the Zometa, compounding the Zometa for infusion, infusion procedure utilizing my port AND the necessary bloodwork to access my levels and tumor markers was $320.00. Plus $15 each for the 5 blood tests. Again, out of the fund. My dwindling fund…
Thanks to North Cypress Medical Center, Ambulatory Infusion Therapy Center Nurses for their kindness!
I went to Christine & Rob’s and had dinner and hung out. We played games, then I came home and fixing to go crash.
To overview:
ZOMETA is (also) used to treat patients with other cancers—including breast‚ lung and prostate cancer—that have spread to the bones‚ a process called bone metastasis. When cancer has spread to the bone‚ treatment with ZOMETA helps to protect bones and may reduce or delay such complications as:
* Bone fracture
* Need for radiation and/or surgery to bone
* Spinal cord compression
