Dr. A. Khan Category

Tuesday, January 26th, 2010

Test Results – Tumor Markers #9

My PCP’s office called with my my lab results…

Last Friday (Jan 22 2010), I had the bloodwork drawn to track my tumor markers. It was draw #9. I’ve been having pretty good results to-date, some ups some downs, some increases, some decreases – all within acceptable margins…

However, I’ve had a lot of unexplained aches and pains, especially breast and bone pain, and been battling stress and depression which I was – am – sure effected my health. So I’ve been Very scared of these results…

Very Scared.

This blood draw was for the monthly tests (most specifically my CEA Tumor Markers).

* April 15, my baseline CEA tumor markers were 63.1 ng/mL (nanograms per milliliter). This is High, as Norm is 0.0-3.0 ng/mL.
I honestly don’t know how high “really high” is, but – in my internet searching – I read one gal talk about the mid-200’s, so I guess my high is not That high, but It’s High To me.
* June 03, my 2nd draw CEA tumor markers were 35.9 ng/mL
* July 03, my 3rd draw CEA tumor markers were 12.8 ng/mL
* August 27, my 4th draw CEA tumor markers were 3.9 ng/mL
* September 18, my 5th draw CEA tumor markers were 3.3 ng/mL
* October 16, my 6th CEA tumor markers were 3.2 ng/mL
* November 20, my 7th CEA tumor markers were 2.7 ng/mL
* December 18, my 8th CEA tumor markers are 2.8 ng/mL

* January 22, my 9th CEA tumor markers are 3.1 ng/mL
This is a .3 INCREASE from last month, and puts me just above the normal range…

Dr. Khan has reassured me that this small increase is nothing to be concerned about, so I will TRY not to worry… Yah, right.

As always, I’m unsure, but this (CEA: The Test) continues to answer Some of my questions…

My Other Numbers as of January 22 2010 blood test results:

* CA-125: 12 U/mL (Reference @ 0-35)
a 2 point DECREASE – down from 14 U/mL from December’s draw… I am well within normal range.

* CA 15-3: 16 U/mL (Reference @ <32)
a 4 point DECREASE – down from from 20 U/mL from December’s draw; I’m well within the normal range.

* CA 27.29 (see CA15-3 above): 27 U/mL (Reference @ <38)
a 4 point DECREASE – down from 31 U/mL from November’s draw. This decrease makes me very happy!

The CA 27.29 test is used to monitor your:

  • Response to treatment
  • Status of your cancer
  • Possibility of early recurrence

With all the aches and pains I’ve been having
With all the stress and depression I’ve been fighting
I’ve been Very Very worried…
But these results help ease my mind.

Taking a breath
Relaxing
Destressing
Its all good…
It Will Be Good.

Visualizing my Dragons
My Warrior Dragons
Burning

Never Stopping.

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Wednesday, December 23rd, 2009

Test Results – Tumor Markers #8

My PCP’s office faxed my lab results…

Last Friday (Dec 18 2009), I had the bloodwork drawn to track my tumor markers. It was draw #8. I’ve been having pretty good results to-date, some ups some downs, some increases that I am concerned about…

This blood draw was for the monthly tests (most specifically my CEA Tumor Markers).

* April 15, my baseline CEA tumor markers were 63.1 ng/mL (nanograms per milliliter). This is High, as Norm is 0.0-3.0 ng/mL.
I honestly don’t know how high “really high” is, but – in my internet searching – I read one gal talk about the mid-200’s, so I guess my high is not That high, but It’s High To me.
* June 03, my 2nd draw CEA tumor markers were 35.9 ng/mL
* July 03, my 3rd draw CEA tumor markers were 12.8 ng/mL
* August 27, my 4th draw CEA tumor markers were 3.9 ng/mL
* September 18, my 5th draw CEA tumor markers were 3.3 ng/mL
* October 16, my 6th CEA tumor markers were 3.2 ng/mL
* November 20, my 7th CEA tumor markers were 2.7 ng/mL
* December 18, my 8th CEA tumor markers are 2.8 ng/mL
This is a .1 INCREASE from last month, but still has me within the Normal range.

As always, I’m unsure, but this (CEA: The Test) continues to answer Some of my questions…

Still hoping that this all means Something Good… I can’t help but be cautious cuz the other shoe always falls for me. Always.

My Other Numbers as of December 18 2009 blood test results:

* CA-125: 14 U/mL (Reference @ 0-35)
a 3 point INCREASE – up from 11 U/mL from November’s draw… I’m not happy, but am still well within the normal range, in fact is very low normal range. But another increase Does worry me.

* CA 15-3: 20 U/mL (Reference @ <32)
a 1 point DECREASE – down from from 21 U/mL from November’s draw; I’m still within the normal range.

* CA 27.29 (see CA15-3 above): 31 U/mL (Reference @ <38)
a 4 point INCREASE – up from 27 U/mL from November’s draw. These increases scare me, though I am still within (high) normal range.

The CA 27.29 test is used to monitor your:

  • Response to treatment
  • Status of your cancer
  • Possibility of early recurrence

Try and relax
Don’t stress the body
Don’t stress the mind
Don’t think about not having a job, Mr. Sack, the total and complete devastation of all my hopes and dreams.
Just don’t think about it all.
Yah, right.

I am so scared. Never stop being scared. Never stop reaching out… to find… no one

Visualizing my Dragons
my Warrior Dragons
Please don’t stop burning.

Please.Don’t.Stop.

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Tuesday, October 20th, 2009

Test Results – Tumor Markers #6

My PCP’s office faxed my lab results…

Last Friday (Oct 16 2009), I had the bloodwork drawn to track my tumor markers. It was draw #6. I’ve been having Very Good Results to-date, however this time we see some increases that make me a bit uneasy…

This blood draw was for the monthly tests (most specifically my CEA Tumor Markers)…

April 15, my baseline CEA tumor markers were 63.1 ng/mL (nanograms per milliliter). This is High, as Norm is 0.0-3.0 ng/mL.
I honestly don’t know how high “really high” is, but – in my internet searching – I read one gal talk about the mid-200’s, so I guess my high is not That high, but It’s High To me.
June 03, my 2nd draw CEA tumor markers were 35.9 ng/mL
July 03, my 3rd draw CEA tumor markers were 12.8 ng/mL
August 27, my 4th draw CEA tumor markers were 3.9 ng/mL
September 18, my 5th draw CEA tumor markers were 3.3 ng/mL
* October 16, my 6th CEA tumor markers are 3.2 ng/mL
3.2 = a .1 DECREASE from last month – this is acceptable and getting closer to normal!

The CEA numbers are still dropping and I’m pleased with that, though they are dropping in smaller increments… I’ll feel better when I’m within the “normal” range.  I Still I wish I was confident with just how much this meant, but this (CEA: The Test) continues to answer Some of my questions…

Still hoping that this all means Something Good…  Something…

My Other Numbers as of October 16 2009 blood test results:

* CA-12510 U/mL (Reference @ 0-35)
a 3 point INCREASE – up from 7 U/mL from September’s draw, I’m not sure how to feel about this… I’m not happy, but don’t know whether to be worried or not as it is still well within the normal range, in fact is very low normal range.

* CA 15-3: 16 U/mL (Reference @ <32)
a 1 point DECREASE – down from from 17 U/mL from September’s draw; I’m not going to stress 1 point since one point variation is acceptable and I am well within the normal range, in fact in the low end of normal.

* CA 27.29 (see CA15-3 above): 30 U/mL (Reference @ <38)
an 11 point INCREASE – up from 19 U/mL from September’s draw.  To me, this is a Huge increase and concerns me a great deal.  I’m still within normal ranges, though I am in the high end of normal now.

The CA 27.29 test is used to monitor your:

  • Response to treatment
  • Status of your cancer
  • Possibility of early recurrence

I’m not sure how I feel about these CA 27.29 numbers… while I’m Very Glad they are still within the normal range, the increase scares the crap out of me.  What scares me so much is that “if your CA 27.29 levels rise, it may indicate that your cancer is progressing or spreading.”  Is this increase enough to be concerned about?  However, “some non life–threatening conditions may also cause CA 27.29 to show up in your blood (ovarian cysts and benign conditions of the breast, liver and kidneys)”, and I DO have Fibrocystic Breast Disease (a “benign condition of the breast”), so That is something in itself to consider… On The Other Hand, I DO have a malignant condition – cancer…

I guess I’ve been “so used” to the good results, to the numbers dropping so dramatically, that this change has really hit me, has reminded me of what I am dealing with, what I am fighting, what is on the line here… my life.

Cancer is what I am dealing with

My life is what I am fighting for

My Life is what is on the line

My Life.

Stress… yes, Lots of stress.  The stress is beating me down.

Both Dr. Deleon and Dr. Khan have advised me to wait and see what happens next month before I become overly concerned.  Dr. Deleon also mentioned that stress can cause tumor markers to rise slightly, and this whole situation IS FREAKING STRESSFUL.  PLUS, I Have cheated on my diet and had some sugar in the past 2 weeks that I should NOT have had… which could be another factor.

So… chill out.

Easy to say.

I am so scared…

Bottom line – we are Hopeful that the PET / CT scan next month will show what is going on, and hopefully will show as much progress as the previous PET / CT scan!

Breathing…. and

Visualizing my Dragons
Still visualizing their Riders,
Still visualizing my Dragons breathing fire,
Still visualizing their Riders wielding their lasers
Burning the tumor,
Burning each evil cell
Into ash.

Burning Burning Burning Each Evil Cell.

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Saturday, September 12th, 2009

HER2 is Ticking

I’ve been somewhat concerned (to be putting it mildly) about the increase in my HER2 levels.

I talked with an oncology nurse who advised me, with the decreases in all my other numbers, to not stress the HER2 increase at this time.

I talked with Dr. Khan (Burzynski Clinic) who advised me, with the decreases in all my other numbers, to not stress the HER2 increase at this time.

At this time…

At.This.Time.

Time just keeps ticking…

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Wednesday, September 9th, 2009

No Surprise

Yesterday, I spoke with Dr. Khan regarding my reaction to restarting the PB.  He was not surprised, which makes me feel “better” cuz I was kinda worried about how intense the reaction was.  He told me that I should not have just started back up with the optimum dosage, I should have built back up as initially.  Good to know.

I do feel Much better this morning.  The headache is pretty much gone and none of the severe muscle and joint pain and total fatigue that I’ve been having since restarting last weekend, just the “normal” muscle and joint aching and basic fatigue as before… normal… ha…

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Tuesday, July 28th, 2009

Changes in Meds – Xeloda

As part of my “Case Management” at the Burzynski Clinic, I get a weekly “touch-base” phone call from Dr. Khan, a nice young fellow.  We discuss what is going on with me – my drug reactions, how I’m feeling and the status of any upcoming tests.

Then he goes and coordinates with Dr. Deleon, and lets me know if any changes need to be made.  So far no changes.  Until yesterday.

Because of the trouble I’m having with my toenails separating from the nailbeds, Dr. Deleon has changed my Xeloda regime from 2 weeks on/1 week off to 1 week on/1 week off.

They also want me to increase my blood testing schedule, since some of my reactions may be due to electrolyte imbalances.  But I’m waiting for billing from the North Cypress Medical Center Laboratory Services for the last blood work I had done, so I can pay… Guess I should call and see what the deal is cuz I don’t want to be denied treatment.

It’s difficult to keep everything straight, and at the end of each day I’m So Dang Tired, I just want to crawl into bed…  Stress, depression and reactions to my treatment contribute to this chronic fatigue.

Notes, I need to keep better notes.

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