Burzynski Clinic Doctors

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Tuesday, January 26th, 2010

Test Results – Tumor Markers #9

My PCP‘s office called with my my lab results…

Last Friday (Jan 22 2010), I had the bloodwork drawn to track my tumor markers. It was draw #9. I’ve been having pretty good results to-date, some ups some downs, some increases, some decreases – all within acceptable margins…

However, I’ve had a lot of unexplained aches and pains, especially breast and bone pain, and been battling stress and depression which I was – am – sure effected my health. So I’ve been Very scared of these results…

Very Scared.

This blood draw was for the monthly tests (most specifically my CEA Tumor Markers).

* April 15, my baseline CEA tumor markers were 63.1 ng/mL (nanograms per milliliter). This is High, as Norm is 0.0-3.0 ng/mL.
I honestly don’t know how high “really high” is, but – in my internet searching – I read one gal talk about the mid-200′s, so I guess my high is not That high, but It’s High To me.
* June 03, my 2nd draw CEA tumor markers were 35.9 ng/mL
* July 03, my 3rd draw CEA tumor markers were 12.8 ng/mL
* August 27, my 4th draw CEA tumor markers were 3.9 ng/mL
* September 18, my 5th draw CEA tumor markers were 3.3 ng/mL
* October 16, my 6th CEA tumor markers were 3.2 ng/mL
* November 20, my 7th CEA tumor markers were 2.7 ng/mL
* December 18, my 8th CEA tumor markers are 2.8 ng/mL

* January 22, my 9th CEA tumor markers are 3.1 ng/mL
This is a .3 INCREASE from last month, and puts me just above the normal range…

Dr. Khan has reassured me that this small increase is nothing to be concerned about, so I will TRY not to worry… Yah, right.

As always, I’m unsure, but this (CEA: The Test) continues to answer Some of my questions…

My Other Numbers as of January 22 2010 blood test results:

* CA-125: 12 U/mL (Reference @ 0-35)
a 2 point DECREASE – down from 14 U/mL from December’s draw… I am well within normal range.

* CA 15-3: 16 U/mL (Reference @ <32)
a 4 point DECREASE – down from from 20 U/mL from December’s draw; I’m well within the normal range.

* CA 27.29 (see CA15-3 above): 27 U/mL (Reference @ <38)
a 4 point DECREASE – down from 31 U/mL from November’s draw. This decrease makes me very happy!

The CA 27.29 test is used to monitor your:

Response to treatment
Status of your cancer
Possibility of early recurrence

With all the aches and pains I’ve been having
With all the stress and depression I’ve been fighting
I’ve been Very Very worried…
But these results help ease my mind.

Taking a breath
Relaxing
Destressing
Its all good…
It Will Be Good.

Visualizing my Dragons
My Warrior Dragons
Burning

Never Stopping.

Tags: Tumor Markers

Posted in Burzynski Clinic, Coping, Dr. A. Khan, Dr. L. Deleon, happiness, Results, Stress, Tests, tired | 3 Comments »

Wednesday, December 23rd, 2009

UPDATE #3: Radio Interview – Its Your Health

INTERVIEW UPDATE #3: Latest update to last update from Lisa Davis of “Its Your Health Radio“:

“No shows tomorrow (Dec 24) due to technical difficulties. Sorry again Denise. Everyone have a great holiday!”

Soooo… my radio interview is postponed again ~sigh~
HOPING that my time will come.
Will be Grateful when it does!

TeamDenise…

Tags: Dec 2009 interview, interview, It's Your Health Radio, Its Your Health, Lisa Davis, radio interview

Posted in Aminocare A10, Antineoplaston Therapy, Burzynski Clinic, Burzynski Clinic Doctors, Dr. S. Burzynski, frustration, Gene Therapy Drugs, Getting The Word Out, Other Things, Stress, tired | 1 Comment »

Wednesday, December 23rd, 2009

Test Results – Tumor Markers #8

My PCP‘s office faxed my lab results…

Last Friday (Dec 18 2009), I had the bloodwork drawn to track my tumor markers. It was draw #8. I’ve been having pretty good results to-date, some ups some downs, some increases that I am concerned about…

This blood draw was for the monthly tests (most specifically my CEA Tumor Markers).

As always, I’m unsure, but this (CEA: The Test) continues to answer Some of my questions…

Still hoping that this all means Something Good… I can’t help but be cautious cuz the other shoe always falls for me. Always.

My Other Numbers as of December 18 2009 blood test results:

* CA-125: 14 U/mL (Reference @ 0-35)
a 3 point INCREASE – up from 11 U/mL from November’s draw… I’m not happy, but am still well within the normal range, in fact is very low normal range. But another increase Does worry me.

* CA 15-3: 20 U/mL (Reference @ <32)
a 1 point DECREASE – down from from 21 U/mL from November’s draw; I’m still within the normal range.

* CA 27.29 (see CA15-3 above): 31 U/mL (Reference @ <38)
a 4 point INCREASE – up from 27 U/mL from November’s draw. These increases scare me, though I am still within (high) normal range.

The CA 27.29 test is used to monitor your:

Response to treatment
Status of your cancer
Possibility of early recurrence

Try and relax
Don’t stress the body
Don’t stress the mind
Don’t think about not having a job, Mr. Sack, the total and complete devastation of all my hopes and dreams.
Just don’t think about it all.
Yah, right.

I am so scared. Never stop being scared. Never stop reaching out… to find… no one

Visualizing my Dragons
my Warrior Dragons
Please don’t stop burning.

Please.Don’t.Stop.

Tags: Tumor Markers

Posted in Burzynski Clinic, Coping, Dr. A. Khan, Dr. L. Deleon, Results, scared, Stress, Tests, tired | 1 Comment »

Wednesday, December 23rd, 2009

UPDATE #2: Radio Interview – Its Your Health

The rescheduled interview on “Its Your Health” radio has been rescheduled to Dec 24, 9:50-10:10am EST.

That’s tomorrow.
TeamDenise!

Tags: Dec 2009 interview, interview, It's Your Health Radio, Its Your Health, Lisa Davis, radio interview, Suzanne Somers

Posted in Aminocare A10, Antineoplaston Therapy, Burzynski Clinic, Burzynski Clinic Doctors, Dr. S. Burzynski, excitement, Gene Therapy Drugs, Getting The Word Out, gratitude, scared, Special People, Team Denise | 1 Comment »

Monday, December 21st, 2009

Christmas Party – Burzynski Clinic

This afternoon was the Christmas Party at The Burzynski Clinic, and I was invited.

I was expecting a simple, informal affair.

I was surprised.
Pleasantly surprised.

And glad that I didn’t bring a plate of cookies like I had planned!

It was held in the Clinic’s new conference room. There (seemed to be) about 20 large circular tables with 8 (or 9?) people per table. Nice small, festive centerpieces on each table.

Dr. Burzynski made a nice speech about the Clinic and its repair from the Hurricane damages, and the new medical and clinical services offered. Then a priest lead a devotional prayer. There were also short speeches made by several other Clinic staff. It was nice – very heartfelt, but not too long.

I saw a lot of staff, some patients that I had met previously and lots of people who I had no idea if were staff, family or patients or guests. But there were a Lot of everyone!

I ran into Dr. Deleon outside of the room, so she brought me to a table of some of her new patients. I got to meet some nice people and we shared our stories… Carol (metastatic colon cancer) and her Hubby; Christina (metastatic colon cancer) and her Hubby, Walt; Delilah and her adult son (brain cancer). All were from out of town, I hope to hear from them on their progress!

I was late, so the appetizers had already been served to each table – a basket of sliced bread, a plate of rolled meats with cheese slivers and grape tomatoes. Also a plate of pickled herring (?) with a sweetened onion relish. It was quite good.

Then they cleared the plates and brought around bottles of champagne.
Oh Yum

And opened the buffet line, which was held in a very narrow side room. That part was not well thought out, as we had to enter and exit through the same door and, as mentioned, the room was fairly narrow.

The food on the buffet line was delicious… There was a Spring Mix salad, green bean casserole, rice with cranberries and pine nuts, baked salmon with a Hollandaise sauce, roast beef with cream gravy, mashed potatoes, uzska (small Polish-style perogies stuffed with a mushroom mixture; uzska which means “little ear” or similar), roasted beef carver with green herb sauce.

For dessert there was Makowiec (Poppy Seed Roll cake) and Pączki (a closed donut filled with cranberry marmalade), and coffee and assorted teas.

It was all really Very good!

All in all, a very nice event.

Tags: Christmas 2009, party

Posted in Burzynski Clinic, Burzynski Clinic Doctors, Dr. S. Burzynski, Totally Non-cancer Related | No Comments »

Monday, December 21st, 2009

UPDATE: Radio Interview – Its Your Health

The interview on “Its Your Health” radio has been canceled due to “technical difficulties”. With the bad weather that they are having up North, I’m not surprised…

Hopefully Lisa can schedule me in another time soon!

Tags: Dec 2009 interview, interview, It's Your Health Radio, Its Your Health, Lisa Davis, radio interview

Posted in Alternative Treatments, Aminocare A10, Antineoplaston Therapy, appreciation, Burzynski Clinic, Burzynski Clinic Doctors, Dr. S. Burzynski, frustration, Gene Therapy Drugs | 2 Comments »

Monday, December 21st, 2009

Radio Interview – Its Your Health

I am being interviewed on a Boston radio station!

It’s pretty exciting…

The show is “Its Your Health” and the host is Lisa Davis – a gal who I connected with via Facebook. Don’t ask me how cuz I don’t remember, but she seems nice.

But I do remember that she mentioned that she wanted to interview me about my battle without insurance.

She remembers me and wants to share my story.

My story.

She also has interviewed Suzanne Somers several times, regarding her new book, Knockout, which addresses cancer and specifically mentions Dr. Burzynski and The Burzynski Clinic. So I will be happy to share my tests results.

I’ve known for about a month that this interview might be upcoming, but didn’t have a firm date. There was talk of “sometime in January”, so I’ve been waiting…
Waiting, waiting waiting…
Hoping
but not expecting.

Now I know.
The interview will be tomorrow – Dec 22 – at 10:50 EST.

Tomorrow
I’m nervous…
Need to get ready.
I’m excited…
Excited to get the word out some more
TeamDenise!

Tags: Dec 2009 interview, interview, It's Your Health Radio, Its Your Health, Lisa Davis, radio interview, Suzanne Somers

Posted in Alternative Treatments, Aminocare A10, Antineoplaston Therapy, appreciation, Burzynski Clinic, Burzynski Clinic Doctors, Cancer, Dr. S. Burzynski, excitement, Gene Therapy Drugs, Getting The Word Out, gratitude, hope, sadness, scared, Special People, Team Denise, tired | 1 Comment »

Tuesday, October 20th, 2009

Test Results – Tumor Markers #6

My PCP‘s office faxed my lab results…

Last Friday (Oct 16 2009), I had the bloodwork drawn to track my tumor markers. It was draw #6. I’ve been having Very Good Results to-date, however this time we see some increases that make me a bit uneasy…

This blood draw was for the monthly tests (most specifically my CEA Tumor Markers)…

* April 15, my baseline CEA tumor markers were 63.1 ng/mL (nanograms per milliliter). This is High, as Norm is 0.0-3.0 ng/mL.
I honestly don’t know how high “really high” is, but – in my internet searching – I read one gal talk about the mid-200′s, so I guess my high is not That high, but It’s High To me.
* June 03, my 2nd draw CEA tumor markers were 35.9 ng/mL
* July 03, my 3rd draw CEA tumor markers were 12.8 ng/mL
* August 27, my 4th draw CEA tumor markers were 3.9 ng/mL
* September 18, my 5th draw CEA tumor markers were 3.3 ng/mL
* October 16, my 6th CEA tumor markers are 3.2 ng/mL
3.2 = a .1 DECREASE from last month – this is acceptable and getting closer to normal!

The CEA numbers are still dropping and I’m pleased with that, though they are dropping in smaller increments… I’ll feel better when I’m within the “normal” range. I Still I wish I was confident with just how much this meant, but this (CEA: The Test) continues to answer Some of my questions…

Still hoping that this all means Something Good… Something…

My Other Numbers as of October 16 2009 blood test results:

* CA-125: 10 U/mL (Reference @ 0-35)
a 3 point INCREASE – up from 7 U/mL from September’s draw, I’m not sure how to feel about this… I’m not happy, but don’t know whether to be worried or not as it is still well within the normal range, in fact is very low normal range.

* CA 15-3: 16 U/mL (Reference @ <32)
a 1 point DECREASE – down from from 17 U/mL from September’s draw; I’m not going to stress 1 point since one point variation is acceptable and I am well within the normal range, in fact in the low end of normal.

* CA 27.29 (see CA15-3 above): 30 U/mL (Reference @ <38)
an 11 point INCREASE – up from 19 U/mL from September’s draw. To me, this is a Huge increase and concerns me a great deal. I’m still within normal ranges, though I am in the high end of normal now.

The CA 27.29 test is used to monitor your:

Response to treatment
Status of your cancer
Possibility of early recurrence

I’m not sure how I feel about these CA 27.29 numbers… while I’m Very Glad they are still within the normal range, the increase scares the crap out of me. What scares me so much is that “if your CA 27.29 levels rise, it may indicate that your cancer is progressing or spreading.” Is this increase enough to be concerned about? However, “some non life–threatening conditions may also cause CA 27.29 to show up in your blood (ovarian cysts and benign conditions of the breast, liver and kidneys)”, and I DO have Fibrocystic Breast Disease (a “benign condition of the breast”), so That is something in itself to consider… On The Other Hand, I DO have a malignant condition – cancer…

I guess I’ve been “so used” to the good results, to the numbers dropping so dramatically, that this change has really hit me, has reminded me of what I am dealing with, what I am fighting, what is on the line here… my life.

Cancer is what I am dealing with

My life is what I am fighting for

My Life is what is on the line

My Life.

Stress… yes, Lots of stress. The stress is beating me down.

Both Dr. Deleon and Dr. Khan have advised me to wait and see what happens next month before I become overly concerned. Dr. Deleon also mentioned that stress can cause tumor markers to rise slightly, and this whole situation IS FREAKING STRESSFUL. PLUS, I Have cheated on my diet and had some sugar in the past 2 weeks that I should NOT have had… which could be another factor.

So… chill out.

Easy to say.

I am so scared…

Bottom line – we are Hopeful that the PET / CT scan next month will show what is going on, and hopefully will show as much progress as the previous PET / CT scan!

Breathing…. and

Visualizing my Dragons
Still visualizing their Riders,
Still visualizing my Dragons breathing fire,
Still visualizing their Riders wielding their lasers
Burning the tumor,
Burning each evil cell
Into ash.

Burning Burning Burning Each Evil Cell.

Tags: Blood Tests, Tumor Markers

Posted in Dr. A. Khan, Dr. L. Deleon, frustration, Results, scared, Stress, Tests, visualization | 4 Comments »

Saturday, September 12th, 2009