2009

Wednesday, December 23rd, 2009

UPDATE #2: Radio Interview – Its Your Health

The rescheduled interview on “Its Your Health” radio has been rescheduled to Dec 24, 9:50-10:10am EST.

That’s tomorrow.
TeamDenise!

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Tuesday, December 22nd, 2009

Holiday Spiritless

This Holiday
is No Holiday
for me

This Joyous Spirit
Around me
Like a faded picture

This Celebration Spirit
Around me
Like shattered glass

This Christmas Spirit
Around me
broken

Spiritless

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Monday, December 21st, 2009

Christmas Party – Burzynski Clinic

This afternoon was the Christmas Party at The Burzynski Clinic, and I was invited.

I was expecting a simple, informal affair.

I was surprised.
Pleasantly surprised.

And glad that I didn’t bring a plate of cookies like I had planned!

It was held in the Clinic’s new conference room. There (seemed to be) about 20 large circular tables with 8 (or 9?) people per table. Nice small, festive centerpieces on each table.

Dr. Burzynski made a nice speech about the Clinic and its repair from the Hurricane damages, and the new medical and clinical services offered. Then a priest lead a devotional prayer. There were also short speeches made by several other Clinic staff. It was nice – very heartfelt, but not too long.

I saw a lot of staff, some patients that I had met previously and lots of people who I had no idea if were staff, family or patients or guests. But there were a Lot of everyone!

I ran into Dr. Deleon outside of the room, so she brought me to a table of some of her new patients. I got to meet some nice people and we shared our stories… Carol (metastatic colon cancer) and her Hubby; Christina (metastatic colon cancer) and her Hubby, Walt; Delilah and her adult son (brain cancer). All were from out of town, I hope to hear from them on their progress!

I was late, so the appetizers had already been served to each table – a basket of sliced bread, a plate of rolled meats with cheese slivers and grape tomatoes. Also a plate of pickled herring (?) with a sweetened onion relish. It was quite good.

Then they cleared the plates and brought around bottles of champagne.
Oh Yum :-)

And opened the buffet line, which was held in a very narrow side room. That part was not well thought out, as we had to enter and exit through the same door and, as mentioned, the room was fairly narrow.

The food on the buffet line was delicious… There was a Spring Mix salad, green bean casserole, rice with cranberries and pine nuts, baked salmon with a Hollandaise sauce, roast beef with cream gravy, mashed potatoes, uzska (small Polish-style perogies stuffed with a mushroom mixture; uzska which means “little ear” or similar), roasted beef carver with green herb sauce.

For dessert there was Makowiec (Poppy Seed Roll cake) and Pączki (a closed donut filled with cranberry marmalade), and coffee and assorted teas.

It was all really Very good!

All in all, a very nice event.

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Monday, December 21st, 2009

UPDATE: Radio Interview – Its Your Health

The interview on “Its Your Health” radio has been canceled due to “technical difficulties”. With the bad weather that they are having up North, I’m not surprised…

Hopefully Lisa can schedule me in another time soon!

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Monday, December 21st, 2009

Radio Interview – Its Your Health

I am being interviewed on a Boston radio station!

It’s pretty exciting…

The show is “Its Your Health” and the host is Lisa Davis – a gal who I connected with via Facebook. Don’t ask me how cuz I don’t remember, but she seems nice.

But I do remember that she mentioned that she wanted to interview me about my battle without insurance.

She remembers me and wants to share my story.

My story.

She also has interviewed Suzanne Somers several times, regarding her new book, Knockout, which addresses cancer and specifically mentions Dr. Burzynski and The Burzynski Clinic. So I will be happy to share my tests results.

I’ve known for about a month that this interview might be upcoming, but didn’t have a firm date. There was talk of “sometime in January”, so I’ve been waiting…
Waiting, waiting waiting…
Hoping
but not expecting.

Now I know.
The interview will be tomorrow – Dec 22 – at 10:50 EST.

Tomorrow
I’m nervous…
Need to get ready.
I’m excited…
Excited to get the word out some more
TeamDenise!

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Monday, December 21st, 2009

Bah Humbug

I can see that this Christmas will be one of the worse of my life.

It should have been one of the best.

But it will not.

I should be with people I love
who love me

But will not.

I should be happy and joyous.

But am not.

Sunday, December 20th, 2009

Puppy Girls

This whole situation with finding someone to care for my Pups for a few days so that I can get to Corpus is very stressful. Everyone I know is gone or will be gone. For Goodness Sakes – It’s Christmas!

Wish my Dad would let me bring them, they are very housebroken and are good girls. I grew up with dogs, so having dogs just comes “natural”. Though I CAN understand how my Folks do not want the bother, responsibility, expense of pets since they are older. They have a cat who is not much trouble.

Not like dogs.

But it Would Only be for a few days, and they are housebroken, very sweet and fairly well behaved. And I would be taking care of them.

Kinda weird to realize that having no dogs in their home is more important than having me there for Christmas.

Kinda weird

Kinda hurtful.

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Saturday, December 19th, 2009

More on The Pups and Christmas

About 2am I started feeling crummy – most probably from the infusion yesterday. Took some Tylenol and went back to sleep. I’ve been feeling crummy all day. Just hanging out at home.

I’ve been trying to find someone to watch the Pups, but everyone already has plans. People make their Holiday plans long in advance. They have their own Families and their own plans. And those plans do not include watching my Puppy Girls…

I’m gonna have my bag packed Just In Case Mom & Dad decide that they can “tolerate” my 2 dogs so that I can go and be with them in Corpus for Christmas. I’ll be ready to go!

This is a very difficult Christmas for me – with everything that has happened this past year – and I would Like to be with my Folks.

I’m understanding my Folks less and less… but I am still hoping…

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Friday, December 18th, 2009

Zometa Infusion #7

Got my 7th Zometa infusion earlier today, Mom was not with me as Dad had his 2nd rotator cuff surgery on Tuesday and she needs to be with him.

* Number 1 was at Burzynski Clinic. It hit me hard
* Number 2 was at North Cypress Ambulatory Infusion Clinic. Thank goodness the 2nd infusion was not that bad
* Number 3 was at North Cypress Ambulatory Infusion Clinic. Again, it was not that bad!
* Number 4 was at North Cypress Ambulatory Infusion Clinic. Again, it was not that bad!
* Number 5 was at North Cypress Ambulatory Infusion Clinic. Again, it was not that bad, just tiring
* Number 6 was at North Cypress Ambulatory Infusion Clinic. Again, it was not that bad, just tiring

And, today, Number 7 was at North Cypress Ambulatory Infusion Clinic. So far it has not been bad, just tiring.

Telia, one of the nurses, took a couple of photos. Not as many as Mom takes though, which will make it much easier to edit through.

I didn’t cry this time, but I am tired…

I saw Marvin, a gentleman I met last time. He is undergoing chemo for colon cancer. He’s a very nice man and we talked for a bit. He is going through some personal issues related to his cancer and treatment. This disease cancer touches – damages – so many parts of our lives. It sucks.

I also had the blood drawn for my monthly lab work, my tumor markers… Should get those results early next week. HOPING they continue to show improvement!

The TOTAL of my charges – receiving the Zometa, compounding the Zometa for infusion, infusion procedure utilizing my port AND the necessary bloodwork to access my levels and tumor markers was $320.00. Plus $15 each for the 5 blood tests. Again, out of the fund. My dwindling fund…

Thanks to North Cypress Medical Center, Ambulatory Infusion Therapy Center Nurses for their kindness!

I went to Christine & Rob’s and had dinner and hung out. We played games, then I came home and fixing to go crash.

To overview:

ZOMETA is (also) used to treat patients with other cancers—including breast‚ lung and prostate cancer—that have spread to the bones‚ a process called bone metastasis. When cancer has spread to the bone‚ treatment with ZOMETA helps to protect bones and may reduce or delay such complications as:
* Bone fracture
* Need for radiation and/or surgery to bone
* Spinal cord compression

Thursday, December 17th, 2009

Unemployment Accepted – for now…

Got a letter today, from Texas Workforce Commission, which indicates that I am “approved” for unemployment benefits.

Perhaps I can take a breather for a bit…?

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