Back on Xeloda Again

I’m back on Xeloda again
Back where I’m trying to mend
Where my body will be ripped
From the cancer that has gripped
Back on Xeloda again

Whoopi-ty-aye-oh
Rockin’ to and fro
Back on Xeloda again
Whoopi-ty-aye-yay
I get cancer out of my way
Back on Xeloda again

Ok, so I’m not a lyricist, no offense to Mr. Gene Autry.

After almost 4 weeks, I am back on Xeloda again…
Back on a very important medication in my battle…

4 weeks… almost a month… a month of lost time…

Lost time due to the attempted $1,500.00 “Medication Maintenance” fee from Burzynski Clinic.
Lost time due to to getting my PCP to write the drug refills for me, so that I can circumvent the “Medication Maintenance” fee.

Lost time…

Now…

I will again deal with more side effects, in addition to the side effects of the other drugs I’m taking (Tarceva, Zolinza, Zometa and Sodium Phenylbutyrate).

Again, adding Xeloda side effects…

The (most common) Xeloda side effects -

* Diarrhea, nausea, vomiting, mouth and throat sores, abdominal pain, upset stomach, constipation, loss of appetite, and dehydration
* pain, swelling or redness of hands or feet that prevents normal activity, dry, itchy or discolored skin, rash, nail problems, and hair loss
* Tiredness, weakness, dizziness, headache, fever, pain (such as chest, back, joint, and muscle), difficulty sleeping, and taste problems

Happy Happy Joy Joy.

In Addition, I need to get the situation with Roche PAP cleared up – regarding the letter I got from them stating that they felt I should have pursued another resource for financial assistance before I went to them.

The letter advising me to contact Texas Health and Human Resources requesting assistance.

The letter telling me that if I am not approved, then Roche will reconsider my situation.

I have 30 days to do this.  After 30 days, my drug assistance for Xeloda will end.

but for now…

I’m back on Xeloda again…

Tags: Xeloda

This entry was posted on Monday, September 21st, 2009 at 10:52 am and is filed under Burzynski Clinic, Burzynski Clinic Financial Charges, Dealing with Gene Therapy Drug Reactions, Dr. R. Taylor, Gene Therapy Drugs. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.