July, 2009

Friday, July 31st, 2009

Reflections…

It’s surreal.

Being this sick – stage 3b – and carrying on with life.  Watching those around me oblivious to my turmoil, my dilemma, my panic.

Going through motions of my daily routine.  A routine dealing with the addition of medication, dietary and lifestyle changes due to this disease.  Maintaining a life when the question of time remains forefront in my thoughts.

I see things differently now. Knowing that whenever I am… gone… now, later… life goes on with or without me.  It will move on and my shadow will fade. How quickly my shadow will fade…

I look at my life and I contemplate what I’ve accomplished, what dreams I have or have not fulfilled…

I am well aware of the many bad choices I’ve made.

Not applying myself as I was perfectly able, and finishing school… not getting an education in a field that I have passion for, and being successfully employed in that field. I’ve sailed through life and foolishly squandered my talents.

I am a secretary, living pay-to-paycheck. Survival, a basic enjoyment, but without passion.  Life deserves passion.

I should have done better for myself.

Not allowing myself to fall in love, to fall for the right guy, to keep both my heart and my eyes opened to the possibilities around me. To never know that my well-being is of utmost importance to the one I have pledged to.  To feel honored when he looks at me with love. To build a life and a family to be proud of.

I help up a standard that was based on fantasy. A man I thought I knew, but who’s attributes were conjured in my mind.  Holding all others up to him in comparison, none to be able to measure up to my belief in who he was… Believing with all my heart, without condition… believing in faireytales. Only to find in reality that he was nothing which I imagined – his promises were empty and his standards shallow.

I should have done better for myself.

Not staying in better touch with those people in my life who are the most important.  Family, old friend, new friends… They who accepted me, as I am – faults, flaws, imperfections… my poorly followed-through, well-meaned intentions… a profound desire to live morally and fairly and do the right thing… sense of justice and injustice… black, white, pale shades of grey… always blanketing my life with the comfort of laughter and humor and general goofiness.

I grew complacent and when pursuing other interests, adventures, I unintentionally neglected those who cared for me.  Allowing the reassurance and strength enjoyed from true and lasting relationships to slip trough my fingers like the proverbial sands of time…

I should have done better for myself.

Yes, I have many regrets, and – no matter the length of my string, when Fate decrees that Atropos cut, it is far too late to begin to balance the scales…

Yes, at the end of the day, when it is dark and I am alone… I mourn.

Yes, I should have done better for myself.

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Thursday, July 30th, 2009

Fight for Fabian

Its “funny” how people come into your life when you need them.

Makes me wonder what I bring to others’ lives, why they would ever need me…

Today, when I went to at Burzynski Clinic for my monthly supply of PB, I met Wayne, the father of Fabian Burke-Georgiou, a beautiful young boy from the UK who is fighting for his life against diffuse pontine glioma, an inoperable brain stem tumor.

Fabian is too ill to travel to Houston, so Wayne came to Burzynski to learn of the treatment and how to administer to his son.  I can’t image a more difficult path for a parent.

And this man, this man Wayne, here in Houston to pursue a chance for his son, a chance for life… this man Wayne, took 30 minutes to sit and talk with me, about fundraising, to give me hope, to offer prayers, To Lift My Spirits.

The monster cancer raises it’s ugly head in so many forms… it does not differentiate between age, sex, race or life experience.

While my own fight is certainly hard, it is especially difficult to see a child having to fight.  One who has not had an opportunity to live yet.  Who has not unintentionally squandered life’s gifts… One who may find unconditional love and acceptance despite flaws…

The least I can do is to ask to please take a moment to go to Fabian’s site and read his story at http://www.FightforFabian.com, and if you have it in your heart, to also please donate to his cause.  Like me, they are only asking for a contribution of a small amount to help save a life.

Help save a life…

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Thursday, July 30th, 2009

Burzynski Clinic Monthly Charge – August 2009

My August 2009 hit… Sodium Phenylbutrate, Aminocare A10 and Case Management… $4,620.00.

Ouch.

CHARGES TO-DATE:
Burzynski Clinic Monthly Charge – August 2009
Burzynski Clinic Monthly Charge – July 2009
Burzynski Clinic Monthly Charge – June 2009
Burzynski Clinic Monthly Charge – May 2009

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Wednesday, July 29th, 2009

Glutamine and Sodium Phenylbutrate

To follow-up on my post regarding the need for PB within my drug regime, here is some interesting info regarding Glutamine and it’s role within the body human…

Specifically – “laboratory studies suggest that glutamine may actually stimulate growth of tumors.”

ARRRGGGGHHHHHHHHH!
Seems Like So Much “stimulates the growth of tumors”!!

Glutamine at Wikipedia

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Tuesday, July 28th, 2009

Changes in Meds – Xeloda

As part of my “Case Management” at the Burzynski Clinic, I get a weekly “touch-base” phone call from Dr. Khan, a nice young fellow.  We discuss what is going on with me – my drug reactions, how I’m feeling and the status of any upcoming tests.

Then he goes and coordinates with Dr. Deleon, and lets me know if any changes need to be made.  So far no changes.  Until yesterday.

Because of the trouble I’m having with my toenails separating from the nailbeds, Dr. Deleon has changed my Xeloda regime from 2 weeks on/1 week off to 1 week on/1 week off.

They also want me to increase my blood testing schedule, since some of my reactions may be due to electrolyte imbalances.  But I’m waiting for billing from the North Cypress Medical Center Laboratory Services for the last blood work I had done, so I can pay… Guess I should call and see what the deal is cuz I don’t want to be denied treatment.

It’s difficult to keep everything straight, and at the end of each day I’m So Dang Tired, I just want to crawl into bed…  Stress, depression and reactions to my treatment contribute to this chronic fatigue.

Notes, I need to keep better notes.

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Monday, July 27th, 2009

Dealing with Wonky Drug Reactions

The latest and “greatest” reactions…

* Headache, dizziness and balance issues
* Chronic fatigue AND insomnia
* Itchy rash on chest, neck and ears still prevalent… also on shoulders and lower back now
* Sores on tongue and cheek diminished
* Inside of lower lip feels like it’s been burned, certain something major is developing there, something to look forward to…
* Acne on face is spreading like crazy – I never had it this bad as a teenager
* Muscle aches
* Bone pain – especially in the lower back, where the metastsis was indicated
* My “Old Friends” Diarrhea and Gas

Boy-o-Boy… just the girl you’d wanna bring home to Mom… ~sigh~

Sunday, July 26th, 2009

Kingwood Underground – Thank You.

Thank You Very Much to the community of of Kingwood Underground who responded to Sheryl’s post about my situation.

You have No Idea how much strength I get from your prayers and kind words of encouragement.  And your donations to my cause will definitely help to ease my financial burden…

Your generosity is Much Appreciated!!

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Saturday, July 25th, 2009

Sheryl – Kingwood Underground

Several years ago, I attended a Bunco event and met some nice ladies. For those who don’t know, Bunco is a dice game which has recently gained some popularity, especially among women in the suburbs – as a social networking outlet.

Well, my interest in Bunco was short cuz I prefer games with more strategy involved, but I did manage to maintain a - mostly online – friendship with a gal named Sheryl. I even went to her home once, as she was/is on eBay Power Seller and I was wanting to get into selling on eBay. I Got A LOT of information from her class – was Well worth it!

Anyway… On Saturday morning, Sheryl helped to “get the word out” and posted a very nice message about my situation on a local community web site, Kingwood Underground

Thanks Sheryl!

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Friday, July 24th, 2009

Tagline

I’ve started signing my emails, my blog comments, my BGG comments, anything I write with the tagline “Surviving breast cancer…”

I type this manually each time.

I’m not doing this to “advertise”.

I type this every time to remind myself:
I AM SURVIVING BREAST CANCER.

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Thursday, July 23rd, 2009

Green Tea – Fighting Cancer

There’s some interesting info on green tea and the fight against cancer…  While it has long been touted as an anti-cancer agent, there is now evidence that it blocks at least one form of chemo

Green Tea Blocks Benefits Of Cancer Drug

In fact, the cancer-fighting benefits of green tea are now being questioned…

No Firm Evidence Green Tea Helps Prevent Cancer

Its just all so confusing, there’s so much info and even conflicting info.

Meanwhile, my life – and the lives of so many others – keep spinning out of control.







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