March, 2009

Tuesday, March 31st, 2009

Mohawk

I had 2 large bald spots on either side of my head…

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so I decided to go on and get a “mohawk”, or as much of one as what was left of my hair would allow…

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Mom and I went to Maribel’s again – that should go without saying by now…

Later, we went to Christine & Rob’s, where Christine helped Mom to dye my mohawk strip a neon blue.

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It was a busy evening… Good times with breast cancer…

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Tuesday, March 31st, 2009

Dr Stanislaw Burzynski

Dad sent me an email, with an attachment, an article from Julian Whitaker’s “Wellness” newsletter.  Dad has been getting this newsletter for years and he & Mom practice many of Dr. Whitaker’s philosophies.  Dr. Whitaker promotes “alternative medicines” and Doctors who practice such. His websites are the Whitaker Wellness Institute and Dr Whitaker Homepage.

The article Dad sent was about a man, a Doctor, who I’ve heard of in the past.  Dr. Stanislaw Burzynski. Dr. Burzynski is a pioneer in cancer treatment.

The article is titled “Cancer Can Be Cured” and dated March 26 2009.  While I think the term “Cured” is a bit premature, I DO Believe that Dr. Burzynski IS on to something in his method of treatment.  And I DO Believe that is Very Well Better than what’s currently being used.

I’m familiar with Dr. Burzynski because I have noted him over the past many years… I’ve read articles on his methods, watched TV shows, seen the Federal Government and the large drug companies try to halt his progress.

There HAS To Be SOMETHING Better Than Chemo.  There HAS to be a treatment that makes more sense.  That is more effective, more humane…

I think I might just call his clinic…  The Burzynski Clinic, located here in Houston, Texas


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Monday, March 30th, 2009

Buzz Cut

My hair is falling out fast and furious now, so I went and got a buzz cut after work today at Maribel’s Great Cuts.  It was pretty emotional… I tried to be light hearted about it, everyone reminds me that this is temporary, that it will grow back…but still…

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Sunday, March 29th, 2009

First Large Bald Spot

Got my first large bald spot this evening. Getting ready for bed and brushed my hair… got a large clump in my brush.

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Sunday, March 29th, 2009

Serpent of Chaos

this poison that slides

through my body

like a serpent

seeking its prey

acidly burning

its path

scorching

killing all

indiscriminate

wasteland

the purpose of living.

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Saturday, March 28th, 2009

Chemo Phase I, #2 – March 26 2009

Thursday was my second treatment of the A/C combo (Adriamycin, aka Red Devil and Cytoxan).

Mom and I bring games to play, while we’re waiting., to try and pass the time, to take my mind off of what is going into my body.

Watching that red liquid flow into my port is terrifying.  The taste in my mouth is noxious.  As advanced as we, as a civilization, are, WHY are we Still utilizing a treatment option that was given to the previous generations?  It Can’t be because it works, because it kills as it “cures”.

I’m tired and there are no answers.

I’m going back to bed…

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Saturday, March 28th, 2009

ER Visit

Last night was Horrible.

I had a bad reaction to the Neulasta – Lots of leg pain, and peaked a fever of 100.  Mom called the Dr, and then overreacted.

At the Dr’s instruction, she brought me to the Emergency Room of Houston Northwest Hospital.

What a combination of a Joke and a Pain to deal with.

We were there from about 2:30am until after 9:00am.

When we got a room, there was equipment with dried blood in it – not so sterile.  Kept hoping they wouldn’t use that equipment on me.

I was poked and prodded, stuck with needles, x-rayed and had a “deep vein” test – they thought I might have a blood clot.

I kept telling them – And Mom – that I was “ok”, it was simply a bad reaction to the Neulasta, but no one would listen to me.

I Am So Mad At Mom for doing this to me.

At the end of the ordeal, they had me talk to the “financial advisor”… another ~financial advisor~.

I was told the cost of the visit would be over $1000, PLUS a bill for the Dr, PLUS separate bills for the tests.

Like I Have That Kinda Money.

I just wanted to Get Out Of There and get home.

Got back home about 9:40am this morning.

I Love Mom Dearly, but DAMN.

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Friday, March 27th, 2009

Toxic Releases

When I woke up this morning, there was crusty stuff in the corners of my eyes and the skin underneath was raw.

The inside of my nose was all crusty and raw too, it smells awful.

My tears burn my cheeks.

I am toxic…

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Thursday, March 26th, 2009

Fretmen MIA

My Fretmen have left… I called to them, but they have not answered.

Abandonment…

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Wednesday, March 25th, 2009

Chemo Tomorrow

Chemo Tomorrow.

Oh God, I Don’t Want To Do This Again.

How can this be happening… Don’t want to go through this again.

Its fairly easy to write about it, until it hits me like a sonic boom – I am The One who I am writing about, I am The One who is going through all this.

There Has to be a Better Way.

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